Beaumont Diane
Northern and Yorkshire Regional Cleft Lip and Palate Service.
Paediatr Nurs. 2006 Apr;18(3):14-8.
The birth of an infant with a facial cleft evokes a range of emotions and reactions in parents. During acceptance of a child's disability, parents are said to progress through several stages similar to those responses reported in the bereavement process. This paper describes the process of adapting in terms of personal construct theory, and reports a pilot of the repertory grid technique as a therapeutic tool to elicit parental reactions following diagnosis of cleft lip and palate. Two mothers compared other significant life events to their reactions to the diagnosis of cleft lip and palate. This pilot supported the use of the repertory grid technique as a means to facilitate exploration of parental responses. Comparisons to the bereavement process were evident, although individual reactions or perceptions may differ from those expected. Recommendations are made for a wider research study within cleft lip and palate.
面部裂隙婴儿的出生会在父母心中引发一系列情绪和反应。在接受孩子的残疾状况时，据说父母会经历几个阶段，类似于丧亲过程中所报告的那些反应。本文根据个人建构理论描述了适应过程，并报告了作为一种治疗工具的 repertory grid 技术的初步试验，以引出唇腭裂诊断后父母的反应。两位母亲将其他重大生活事件与她们对唇腭裂诊断的反应进行了比较。这项初步试验支持将 repertory grid 技术用作促进探索父母反应的一种手段。与丧亲过程的比较很明显，尽管个体反应或认知可能与预期不同。针对唇腭裂领域开展更广泛的研究提出了建议。
