Edelman Perry, Kuhn Daniel, Fulton Bradley R, Kyrouac Gregory A
Mather LifeWays Institute on Aging, Evanston, IL 60201, USA.
Am J Alzheimers Dis Other Demen. 2006 Aug-Sep;21(4):226-33. doi: 10.1177/1533317506290664.
This study aimed to identify the information and service needs of persons with Alzheimer's disease (AD) and their family caregivers living in rural communities and to assess differences and similarities in each partner's perspective. In an outpatient clinic setting, a self-report survey was completed by 100 caregivers, while a similar survey was used to interview 100 persons with mild to moderate AD. The survey assessed respondents' interest in information or services related to 22 topics about AD and various aspects of coping with the disease. Although more caregivers than persons with AD reported interest in each topic, 8 of the top 10 topics endorsed by each group of respondents were the same. However, analysis of responses by dyads revealed substantial disagreement in terms of each partner's interest in information and services. Patient and family education, as well as referrals for services, must take into account each partner's unique perspective and needs.
本研究旨在确定生活在农村社区的阿尔茨海默病（AD）患者及其家庭护理人员的信息和服务需求，并评估每个伴侣观点中的差异和相似之处。在门诊环境中，100名护理人员完成了一份自我报告调查，同时使用类似的调查对100名轻度至中度AD患者进行了访谈。该调查评估了受访者对与AD相关的22个主题以及应对该疾病的各个方面的信息或服务的兴趣。尽管报告对每个主题感兴趣的护理人员比AD患者多，但每组受访者认可的前10个主题中有8个是相同的。然而，对二元组反应的分析显示，每个伴侣对信息和服务的兴趣存在很大分歧。患者和家庭教育以及服务转介必须考虑到每个伴侣的独特观点和需求。
