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在纵向研究中招募和留住儿童癌症的大龄青少年及年轻成年女性幸存者。

Recruitment and retention of older adolescent and young adult female survivors of childhood cancer in longitudinal research.

作者信息

Cantrell Mary Ann, Conte Teresa, Hudson Melissa, Shad Aziza, Ruble Kathy, Herth Kaye, Canino Alyssa, Kemmy Sinead

机构信息

College of Nursing, Villanova University, Villanova, PA, USA.

出版信息

Oncol Nurs Forum. 2012 Sep;39(5):483-90. doi: 10.1188/12.ONF.483-490.

DOI:10.1188/12.ONF.483-490
PMID:22940512
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3927146/
Abstract

PURPOSE/OBJECTIVES: To describe the challenges encountered in the recruitment and retention of a sample of older adolescent and young adult female survivors of childhood cancer for a longitudinal study testing a targeted psychosocial intervention aimed at enhancing hope.

DATA SOURCES

Published literature on constructing longitudinal intervention studies and strategies in the recruitment and retention of childhood cancer survivors in research was used to develop the protocol of this study.

DATA SYNTHESIS

Using empirical literature to construct the study's design resulted in achieving certain goals for the design, but not in the recruitment and retention of study participants. Using online technology to deliver the intervention and collect data was efficient and effective. Traditional approaches to recruitment and retention of those survivors, however, were not effective. Use of more novel approaches to enroll study participants demonstrated only modest success.

CONCLUSIONS

Additional research is needed on strategies to successfully recruit and retain older adolescents and young adult female survivors of childhood cancer in longitudinal intervention studies.

IMPLICATIONS FOR NURSING

The improvement in the psychological well-being of female survivors of childhood cancer remains an important outcome in ongoing care. The need to continue to identify creative and effective ways to recruit and retain those survivors is warranted.

摘要

目的/目标:描述在招募和留住一组老年青少年及年轻成年女性儿童癌症幸存者样本时所遇到的挑战,该样本用于一项纵向研究,该研究测试一项旨在增强希望的针对性心理社会干预措施。

数据来源

关于构建纵向干预研究以及在研究中招募和留住儿童癌症幸存者的策略的已发表文献被用于制定本研究方案。

数据综合

利用实证文献构建研究设计实现了设计的某些目标,但在研究参与者的招募和留住方面却未成功。使用在线技术提供干预措施和收集数据高效且有效。然而,招募和留住这些幸存者的传统方法并不有效。采用更新颖的方法来招募研究参与者仅取得了一定程度的成功。

结论

需要就纵向干预研究中成功招募和留住老年青少年及年轻成年女性儿童癌症幸存者的策略开展更多研究。

对护理的启示

改善儿童癌症女性幸存者的心理健康仍是持续护理中的一项重要成果。有必要继续寻找创新且有效的方法来招募和留住这些幸存者。

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