Lindley C M, Hirsch J D
School of Pharmacy, University of North Carolina, Chapel Hill.
Oncol Nurs Forum. 1994 Jan-Feb;21(1):103-8; discussion 108-10.
PURPOSE/OBJECTIVES: To provide an overview of the current attitudes and perceptions of oncology nurses regarding the relevance and measurability of quality of life (QOL) in patients with cancer.
Exploratory survey conducted at a scientific exhibit of QOL instruments at the 1990 Oncology Nursing Society Congress held in Washington, DC.
Convenience sample of 621 nurses visiting the exhibit.
Subjects completed two questionnaires addressing opinions regarding the impact of treatment on QOL, the importance of QOL as an outcome measure, the current status of QOL assessment, barriers to measuring QOL, and knowledge about QOL measurement tissues.
Results of answers to questionnaire items overall as well as selected demographic variables.
Chemotherapy was thought to have the greatest negative impact on QOL, and vomiting, nausea, and tiredness were judged to be the side effects of treatment that most commonly affected QOL. QOL was judged as important an outcome measure as tumor response, toxicity, and survival. Generally, nurses were knowledgeable regarding QOL measurement issues; however, many of the respondents indicated that they believed valid QOL instruments did not exist or that QOL could not be objectively quantified.
Nurses value QOL as an outcome measure of cancer treatment but lack knowledge regarding its measurability, particularly with respect to reliable tools and available time to assess it well.
Nurses can be instrumental in incorporating QOL measurement as an outcome of treatment and development of brief self-administered tools. Commentary on this research and author response is included at the conclusion of the article.
目的/目标:概述肿瘤护理人员目前对于癌症患者生活质量(QOL)的相关性和可测量性的态度及看法。
在1990年于华盛顿特区举行的肿瘤护理学会大会的生活质量仪器科学展览会上进行的探索性调查。
参观该展览的621名护士组成的便利样本。
受试者完成两份问卷,内容涉及治疗对生活质量的影响、生活质量作为结局指标的重要性、生活质量评估的现状、测量生活质量的障碍以及关于生活质量测量工具的知识。
问卷项目的总体答案结果以及选定的人口统计学变量。
化疗被认为对生活质量有最大的负面影响,呕吐、恶心和疲劳被判定为最常影响生活质量的治疗副作用。生活质量被判定为与肿瘤反应、毒性和生存同样重要的结局指标。总体而言,护士对生活质量测量问题有一定了解;然而,许多受访者表示他们认为不存在有效的生活质量测量工具,或者生活质量无法客观量化。
护士重视生活质量作为癌症治疗的结局指标,但缺乏关于其可测量性的知识,尤其是在可靠工具和有足够时间进行良好评估方面。
护士在将生活质量测量纳入治疗结局以及开发简短的自我管理工具方面可以发挥重要作用。文章结尾包含对本研究的评论及作者回应。