泰国母亲照顾重型地中海贫血患儿的生活经历。
Lived experiences of mothers caring for children with thalassemia major in Thailand.
作者信息
Prasomsuk Suksiri, Jetsrisuparp Arunee, Ratanasiri Thawalwong, Ratanasiri Amornrat
机构信息
Community Health Department, Siam University, Thailand.
出版信息
J Spec Pediatr Nurs. 2007 Jan;12(1):13-23. doi: 10.1111/j.1744-6155.2007.00085.x.
ISSUES AND PURPOSE
Thalassemic patients must be given continuous treatment throughout their lives due to the physical and psychological effects of their disorder; their families also are impacted. This qualitative study explored the lived experiences of 15 mothers of children with thalassemia major by conducting semistructured interviews; the data were analyzed utilizing content analysis.
CONCLUSION
Six themes were identified: lack of knowledge about thalassemia, psychosocial problems, concerns for the future, social support systems, financial difficulty, and the effectiveness of healthcare services.
PRACTICE IMPLICATIONS
These findings suggest that a holistic, culturally sensitive nursing approach should be considered when caring for children with thalassemia.
问题与目的
由于地中海贫血症对患者身体和心理的影响，地中海贫血症患者必须终生接受持续治疗；他们的家庭也会受到影响。这项定性研究通过进行半结构化访谈，探索了15位重型地中海贫血症患儿母亲的生活经历；并利用内容分析法对数据进行了分析。
结论
确定了六个主题：对地中海贫血症缺乏了解、心理社会问题、对未来的担忧、社会支持系统、经济困难以及医疗服务的有效性。
实践意义
这些研究结果表明，在护理地中海贫血症患儿时，应考虑采用全面的、具有文化敏感性的护理方法。
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