塔斯基吉遗产项目：少数群体参与生物医学研究的意愿
The Tuskegee Legacy Project: willingness of minorities to participate in biomedical research.
作者信息
Katz Ralph V, Kegeles S Steven, Kressin Nancy R, Green B Lee, Wang Min Qi, James Sherman A, Russell Stefanie Luise, Claudio Cristina
机构信息
Department of Epidemiology & Health Promotion, New York University College of Dentistry, New York, USA.
出版信息
J Health Care Poor Underserved. 2006 Nov;17(4):698-715. doi: 10.1353/hpu.2006.0126.
The broad goal of the Tuskegee Legacy Project (TLP) study was to address, and understand, a range of issues related to the recruitment and retention of Blacks and other minorities in biomedical research studies. The specific aim of this analysis was to compare the self-reported willingness of Blacks, Hispanics, and Whites to participate as research subjects in biomedical studies, as measured by the Likelihood of Participation (LOP) Scale and the Guinea Pig Fear Factor (GPFF) Scale. The Tuskegee Legacy Project Questionnaire, a 60 item instrument, was administered to 1,133 adult Blacks, Hispanics, and non-Hispanic Whites in 4 U.S. cities. The findings revealed no difference in self-reported willingness to participate in biomedical research, as measured by the LOP Scale, between Blacks, Hispanics, and Whites, despite Blacks being 1.8 times as likely as Whites to have a higher fear of participation in biomedical research on the GPFF Scale.
塔斯基吉遗产项目（TLP）研究的总体目标是解决并理解一系列与在生物医学研究中招募和留住黑人和其他少数族裔相关的问题。该分析的具体目的是比较黑人群体、西班牙裔群体和白人群体自我报告的参与生物医学研究的意愿，这是通过参与可能性（LOP）量表和“实验对象恐惧因素”（GPFF）量表来衡量的。塔斯基吉遗产项目问卷是一份包含60个条目的工具，在美国4个城市对1133名成年黑人群体、西班牙裔群体和非西班牙裔白人群体进行了调查。研究结果显示，在通过LOP量表衡量的自我报告参与生物医学研究的意愿方面，黑人群体、西班牙裔群体和白人群体之间没有差异，尽管在GPFF量表上，黑人对参与生物医学研究的恐惧程度是白人的1.8倍。
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