Baghi Mehran, Wagenblast Jens, Hambek Markus, Radeloff Andreas, Gstoettner Wolfgang, Scherzed Agmal, Spaenkuch Birgit, Yuan Juping, Hornung Stefan, Strebhardt Klaus, Knecht Rainald
Department of Otorhinolaryngology, School of Medicine, J.W. Goethe University, Frankfurt, Germany.
Laryngoscope. 2007 Apr;117(4):712-6. doi: 10.1097/mlg.0b013e318031d0b4.
Relatives of cancer patients experience high levels of stress that influence the quality of life of these individuals. To investigate whether there is a necessity for simultaneous supportive care of patient relatives, we performed for the first time a study asking the closest relatives of head and neck cancer patients about their needs during and after the treatment to consider how to optimize the situation for such patient groups.
Patients' relatives were assessed using an anonymous self-report questionnaire that was established in our department by expanding on a questionnaire for cancer patients' relatives from the psycho-oncologic society in Switzerland. The evaluation was multidimensional, cancer specific, and relative based.
Relatives feel confronted themselves with cancer, although indirectly. The majority of the respondents were of the opinion that simultaneous psychological care of the patients and for the caring relatives would be helpful to cope with the situation.
This study shows the significant impact of cancer on caring relatives of head and neck cancer patients. In our opinion, health services should become more aware of this potential to ensure that the needs of the involved patient relatives are met as well as those of the patients.
癌症患者的亲属承受着高水平的压力,这会影响这些人的生活质量。为了调查是否有必要同时为患者亲属提供支持性护理,我们首次开展了一项研究,询问头颈癌患者的至亲在治疗期间及之后的需求,以考虑如何优化这类患者群体的状况。
使用一份匿名自填问卷对患者亲属进行评估,该问卷是在我们科室通过扩展瑞士心理肿瘤学会的癌症患者亲属问卷而编制的。评估是多维度的、针对癌症的且基于亲属的。
亲属们感觉自己也间接地面临着癌症问题。大多数受访者认为,同时为患者及其护理亲属提供心理护理将有助于应对这种情况。
本研究表明癌症对头颈癌患者的护理亲属有重大影响。我们认为,卫生服务机构应更加意识到这一潜在问题,以确保满足相关患者亲属以及患者的需求。