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针对患有特应性皮炎幼儿家长的一项教育项目的三年意大利经验:知识水平的提高会降低特应性皮炎患儿家长的焦虑程度。

Three years of Italian experience of an educational program for parents of young children affected by atopic dermatitis: improving knowledge produces lower anxiety levels in parents of children with atopic dermatitis.

作者信息

Ricci Giampaolo, Bendandi Barbara, Aiazzi Rosalba, Patrizi Annalisa, Masi Massimo

机构信息

Department of Pediatrics, University of Bologna, Italy.

出版信息

Pediatr Dermatol. 2009 Jan-Feb;26(1):1-5. doi: 10.1111/j.1525-1470.2008.00813.x.

DOI:10.1111/j.1525-1470.2008.00813.x
PMID:19250397
Abstract

The chronic course of atopic dermatitis is a problem for children and their families: it can be extremely disabling, and may cause psychologic problems for both child and family. As atopic dermatitis affects 10% of the pediatric population, pediatricians and dermatologists spend much time on the treatment of this disease, which requires a multidisciplinary approach. To improve the quality of life of children and families affected by atopic dermatitis we have offered an educational program to the parents of young children affected by the disease. The program consists of six meetings at weekly intervals involving a pediatric allergist, a dermatologist, and a psychologist. Our experience has been positive. This type of program may help to improve the quality of life of families with children affected by atopic dermatitis. Lower levels of anxiety were observed among parents at the end of the program. We believe that educational programs of this type, in association with conventional treatment, can be useful in the long term management of the disease. They may be considered to improve the quality of life of the family and children and to create more interaction and compliance between physicians, parents, and children.

摘要

特应性皮炎的慢性病程对儿童及其家庭来说是个问题

它可能极具致残性,并且可能给儿童和家庭都带来心理问题。由于特应性皮炎影响10%的儿科人群,儿科医生和皮肤科医生在治疗这种疾病上花费了大量时间,而这需要多学科方法。为了提高受特应性皮炎影响的儿童和家庭的生活质量,我们为患该病的幼儿家长提供了一个教育项目。该项目包括六次每周一次的会面,涉及一名儿科过敏症专科医生、一名皮肤科医生和一名心理学家。我们的经验是积极的。这种类型的项目可能有助于提高有患特应性皮炎儿童的家庭的生活质量。在项目结束时,家长的焦虑水平有所降低。我们认为,这种类型的教育项目与传统治疗相结合,在该疾病的长期管理中可能会有用。它们可能被认为有助于提高家庭和儿童的生活质量,并在医生、家长和儿童之间创造更多互动和依从性。

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