Kim Keum Soon, Kim Bog Ja, Kim Kyung Hee, Choe Myoung-Ae, Yi Myungsun, Hah Yang-Sook, Chung Sun Ju, Kwon So-Hi
The Research Institute of Nursing Science, Seoul National University, Seoul, Korea.
Taehan Kanho Hakhoe Chi. 2007 Mar;37(2):242-8. doi: 10.4040/jkan.2007.37.2.242.
Parkinson's disease (PD) is a common neurodegenerative disorder characterized by motor disabilities and increasing dependence on others for daily life activities with consequent impact on patients' and caregivers' quality of life. The aim of this study was to elucidate the burden on primary caregivers of patients with PD, and identify related factors.
A cross-sectional descriptive study. Seventy-six primary caregivers of PD patients in a neurology outpatient clinic, Seoul, Korea completed structured questionnaires, of which 68 were analyzed. The structured self-report questionnaire included (1) demographic information on the caregivers, (2) information regarding the disease characteristics of the patients, and (3) the subjective and objective caregiver burdens as assessed on Montgomery, Gonyea, & Hooyman's scale.
The mean age of the caregivers was 54.56 years, and spouses represented the largest proportion(47.0%). Caregivers of PD patients experienced high levels of burden (mean scores on the subjective and objective burdens were 45.22 and 34.90, respectively), which were comparable to the caregiver burdens in stroke, and higher than the caregiver burdens in general chronic disease. Older caregivers and spousal caregivers experienced significantly higher burdens (p=.004 and p=.019, respectively). A greater motor disability and higher modified Hoehn and Yahr grade were related to higher caregiver burden (p=.001 and p=.018, respectively).
Caring for PD patients is associated with a high level of caregiver burden. Therefore, healthcare professionals should identify the burden of caregivers who look after PD patients and develop comprehensive management strategies both for patients and their caregivers.
帕金森病（PD）是一种常见的神经退行性疾病，其特征为运动功能障碍以及在日常生活活动中对他人的依赖日益增加，从而对患者及其照料者的生活质量产生影响。本研究的目的是阐明帕金森病患者的主要照料者所承受的负担，并确定相关因素。
一项横断面描述性研究。韩国首尔一家神经内科门诊的76名帕金森病患者的主要照料者完成了结构化问卷，其中68份问卷纳入分析。结构化的自我报告问卷包括：（1）照料者的人口统计学信息；（2）患者的疾病特征信息；（3）根据蒙哥马利、戈尼亚和胡伊曼量表评估的主观和客观照料者负担。
照料者的平均年龄为54.56岁，配偶占比最大（47.0%）。帕金森病患者的照料者承受着较高水平的负担（主观和客观负担的平均得分分别为45.22和34.90），这与中风患者的照料者负担相当，且高于一般慢性病患者的照料者负担。年龄较大的照料者和配偶照料者承受的负担显著更高（分别为p = 0.004和p = 0.019）。更大的运动功能障碍和更高的改良Hoehn - Yahr分级与更高的照料者负担相关（分别为p = 0.001和p = 0.018）。
照料帕金森病患者与照料者的高负担相关。因此，医疗保健专业人员应识别照料帕金森病患者的照料者所承受的负担，并为患者及其照料者制定全面的管理策略。
