相似文献
1
Valid consent for genomic epidemiology in developing countries.
PLoS Med. 2007 Apr;4(4):e95. doi: 10.1371/journal.pmed.0040095.
2
Consent for genomic epidemiology in developing countries: added human subject protection also needed.
PLoS Med. 2007 Jun;4(6):e214. doi: 10.1371/journal.pmed.0040214.
3
Personal genomes: when consent gets in the way.
Nature. 2008 Nov 6;456(7218):32-3. doi: 10.1038/456032a.
4
Safeguards in the use of DNA databanks in genomic research.
Genet Med. 2004 Nov-Dec;6(6):526-9. doi: 10.1097/01.gim.0000144070.93743.3b.
5
Strengthening the informed consent process in international health research through community engagement: The KEMRI-Wellcome Trust Research Programme Experience.
PLoS Med. 2011 Sep;8(9):e1001089. doi: 10.1371/journal.pmed.1001089. Epub 2011 Sep 13.
6
Ethical issues in human genomics research in developing countries.
BMC Med Ethics. 2011 Mar 18;12:5. doi: 10.1186/1472-6939-12-5.
7
Informed consent in the genomics era.
PLoS Med. 2008 Sep 16;5(9):e192. doi: 10.1371/journal.pmed.0050192.
8
Bridging the divide between genomic science and indigenous peoples.
J Law Med Ethics. 2010 Fall;38(3):684-96. doi: 10.1111/j.1748-720X.2010.00521.x.
9
Informed consent and ethical re-use of African genomic data.
Hum Genomics. 2014 Oct 22;8(1):18. doi: 10.1186/s40246-014-0018-7.
10
Thinking about the idea of consent in data science genomics: How 'informed' is it?
Nurs Philos. 2021 Jul;22(3):e12347. doi: 10.1111/nup.12347. Epub 2021 May 12.
引用本文的文献
1
Ethical considerations for genetic research in low-income countries: perceptions of informed consent, data sharing, and expectations in Nicaragua.
Eur J Hum Genet. 2024 Oct;32(10):1278-1284. doi: 10.1038/s41431-023-01505-7. Epub 2023 Dec 5.
2
Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study.
Res Ethics. 2022 Jul;18(3):193-209. doi: 10.1177/17470161221076974. Epub 2022 Feb 7.
3
Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa.
BMC Med Ethics. 2022 Apr 18;23(1):43. doi: 10.1186/s12910-022-00782-z.
4
Co-developing a common glossary with stakeholders for engagement on new genetic approaches for malaria control in a local African setting.
Malar J. 2021 Jan 21;20(1):53. doi: 10.1186/s12936-020-03577-y.
5
A qualitative study on aspects of consent for genomic research in communities with low literacy.
BMC Med Ethics. 2020 Jun 12;21(1):48. doi: 10.1186/s12910-020-00488-0.
6
Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.
Front Genet. 2017 Jul 20;8:99. doi: 10.3389/fgene.2017.00099. eCollection 2017.
7
"I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.
BMC Med Ethics. 2017 Feb 15;18(1):12. doi: 10.1186/s12910-017-0175-z.
8
Addressing ethical challenges in the Genetics Substudy of the National Eye Survey of Trinidad and Tobago (GSNESTT).
Appl Transl Genom. 2016 May 12;9:6-14. doi: 10.1016/j.atg.2016.05.001. eCollection 2016 Jun.
9
Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali.
BMC Med Ethics. 2015 Jun 16;16:42. doi: 10.1186/s12910-015-0035-7.
10
Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries.
Dev World Bioeth. 2015 Dec;15(3):267-74. doi: 10.1111/dewb.12071. Epub 2014 Oct 8.
本文引用的文献
1
Informed consent and participant perceptions of influenza vaccine trials in South Africa.
J Med Ethics. 2005 Dec;31(12):727-32. doi: 10.1136/jme.2004.009910.
2
Community permission for medical research in developing countries.
Clin Infect Dis. 2005 Jul 15;41(2):255-9. doi: 10.1086/430707. Epub 2005 Jun 7.
3
Ethical concerns regarding guidelines for the conduct of clinical research on children.
J Med Ethics. 2005 Jun;31(6):351-4. doi: 10.1136/jme.2004.009555.
4
Global voices of science. It takes a village: medical research and ethics in Mali.
Science. 2005 Feb 4;307(5710):679-81. doi: 10.1126/science.1109773.
5
Understanding of informed consent in a low-income setting: three case studies from the Kenyan Coast.
Soc Sci Med. 2004 Dec;59(12):2547-59. doi: 10.1016/j.socscimed.2004.03.037.
6
Integrating ethics and science in the International HapMap Project.
Nat Rev Genet. 2004 Jun;5(6):467-75. doi: 10.1038/nrg1351.
7
A comparison of anemia in hemoglobin C and normal hemoglobin A children with Plasmodium falciparum malaria.
Acta Trop. 2004 May;90(3):295-9. doi: 10.1016/j.actatropica.2004.02.005.
8
International ethical guidelines for biomedical research involving human subjects.
Bull Med Ethics. 2002 Oct(182):17-23.
9
Genomics and global health: time for a reappraisal.
Science. 2003 Oct 24;302(5645):597-9. doi: 10.1126/science.1089864.
10
Problematic variation in local institutional review of a multicenter genetic epidemiology study.
JAMA. 2003 Jul 16;290(3):360-6. doi: 10.1001/jama.290.3.360.
Zotero 插件