Eide Phyllis
Washington State University Intercollegiate College of Nursing, 2917 W Fort George Wright Dr, Spokane, WA 99224, USA.
Women Health. 2006;44(4):41-59. doi: 10.1300/j013v44n04_03.
This article describes a qualitative inquiry into the experiences of Native Hawaiian women living through and beyond a diagnosis of breast cancer. Native Hawaiian women have increased incidence and mortality breast cancer rates compared with other ethnic groups in Hawaii. Health promotion programs targeted at Native Hawaiians have often failed because of cultural inappropriateness. A lack of knowledge about the culture is frequently a part of this failure. Therefore, the specific purpose of this study was to examine the lived experience of a selected group of Native Hawaiian breast cancer survivors, uncover the connections between their narratives and their personal and cultural milieux, and generate knowledge about the Native Hawaiian woman's breast cancer experience that would be useful in planning future health promotion outreach efforts. The study consisted of interview data collected from 11 Native Hawaiian female participants, ranging from 44 to 82 years of age. An interpretive phenomenological analysis of the data identified recurrent contexts and themes. The three major contexts in their stories were discovery, transformation (physical, emotional and spiritual), and life realignment. Themes included the importance of spiritual connection, an altruistic desire to reach out and assist others in a similar situation, and a context of familial silence about cancer history. These elements can assist in formulating health promotion and intervention activities for this population. Interwoven with these themes was the Native Hawaiian concept of pono--a sense of rightness and balance, and the crucial importance of the participants' Native Hawaiian identity and cultural heritage.
本文描述了一项针对夏威夷原住民女性乳腺癌诊断经历及后续情况的定性研究。与夏威夷其他种族群体相比,夏威夷原住民女性乳腺癌的发病率和死亡率更高。针对夏威夷原住民的健康促进项目常常因文化不恰当而失败。对文化缺乏了解往往是导致这种失败的原因之一。因此,本研究的具体目的是考察一组选定的夏威夷原住民乳腺癌幸存者的生活经历,揭示她们的叙述与个人及文化环境之间的联系,并生成有关夏威夷原住民女性乳腺癌经历的知识,这将有助于规划未来的健康促进推广工作。该研究包括从11名年龄在44岁至82岁之间的夏威夷原住民女性参与者收集的访谈数据。对数据进行的解释性现象学分析确定了反复出现的背景和主题。她们故事中的三个主要背景是发现、转变(身体、情感和精神方面)以及生活重新调整。主题包括精神联系的重要性、向处于类似情况的他人伸出援手并提供帮助的利他愿望,以及家庭对癌症病史保持沉默的情况。这些要素有助于为该人群制定健康促进和干预活动。与这些主题交织在一起的是夏威夷原住民的“pono”概念——一种正确和平衡的感觉,以及参与者的夏威夷原住民身份和文化遗产的至关重要性。