Banner R O, DeCambra H, Enos R, Gotay C, Hammond O W, Hedlung N, Issell B F, Matsunaga D S, Tsark J A
Wai'anae Coast Comprehensive Health Center, Hawaii, USA.
Prev Med. 1995 Sep;24(5):447-53. doi: 10.1006/pmed.1995.1072.
This article describes a breast and cervical cancer control project in a Native Hawaiian community and presents preliminary findings from its first year. The project is community driven, with Native Hawaiian community investigators and advisors involved in all phases of the research project. Its purpose is to test the effectiveness of a culturally appropriate intervention as a means of increasing breast and cervical cancer screening practices among Native Hawaiian women.
This article discusses the process of community participation in the development of a baseline survey as well as selected findings from that survey. A baseline telephone survey was conducted to obtain an initial assessment of community knowledge, attitudes, and behavior related to cancer. Community representatives were an integral part of the research team that planned and implemented the survey.
A total of 1,260 women drawn equally from the study and the control communities participated in the survey. A majority of those surveyed in both communities indicated adherence to cancer screening recommendations. Seventy-three percent of the women reported having obtained a Pap test during the past 2 years. Fifty-nine percent of women over 40 years of age reported having had a mammogram during the past 2 years. Twenty-eight percent reported having used Hawaiian remedies within the past year. Thirty-six percent of the women reported encouraging others to obtain cancer screening services.
Though a majority of the target population are following cancer screening guidelines, a significant minority are not. While the project intervention aims to change the screening behavior of women not currently getting cancer screening, it plans to do so by enlisting the women already in compliance to reach others in their social networks who are currently not getting cancer screening. The involvement of community representatives, working alongside researchers, in baseline survey planning helped assure the survey was acceptable to the participants and the community as a whole. This process is illustrative of a participatory research commitment which underlies success in the early phase of this Native Hawaiian research project.
本文介绍了一个夏威夷原住民社区的乳腺癌和宫颈癌控制项目，并展示了其第一年的初步研究结果。该项目由社区推动，夏威夷原住民社区的研究人员和顾问参与了研究项目的各个阶段。其目的是测试一种符合文化习俗的干预措施作为增加夏威夷原住民女性乳腺癌和宫颈癌筛查行为的手段的有效性。
本文讨论了社区参与基线调查开发的过程以及该调查的部分选定结果。进行了一项基线电话调查，以初步评估社区与癌症相关的知识、态度和行为。社区代表是计划和实施该调查的研究团队的重要组成部分。
来自研究社区和对照社区的1260名女性平等参与了调查。两个社区中接受调查的大多数人表示遵守癌症筛查建议。73%的女性报告在过去两年内进行了巴氏试验。40岁以上女性中有59%报告在过去两年内进行了乳房X光检查。28%的人报告在过去一年中使用过夏威夷疗法。36%的女性报告鼓励其他人获得癌症筛查服务。
尽管大多数目标人群遵循癌症筛查指南，但仍有相当一部分人没有。虽然该项目干预旨在改变目前未进行癌症筛查的女性的筛查行为，但它计划通过让已经遵守规定的女性去接触其社交网络中目前未进行癌症筛查的其他人来实现这一目标。社区代表与研究人员一起参与基线调查规划，有助于确保该调查为参与者和整个社区所接受。这一过程体现了参与式研究的承诺，这是该夏威夷原住民研究项目早期成功的基础。
