Ward-Smith Peggy, Hamlin Julie, Bartholomew Joy, Stegenga Kristen
University of Missouri-Kansas City, School of Nursing, Kansas City, Missouri 64108, USA.
J Pediatr Oncol Nurs. 2007 May-Jun;24(3):166-71. doi: 10.1177/1043454207299656.
The purpose of this study is to enable adolescents with cancer to self-evaluate their quality of life (QoL). Data were collected using a newly developed Likertscaled QoL instrument. In addition, each participant could comment on how the variable impacted his or her QoL. Demographic data were self-disclosed to describe the sample population of 75 adolescents (41 males and 34 females). Overall QoL scores ranged from 27 to 48 (mean = 41.27, SD = 4.31) of a possible 48. Quality of life scores were lowest among those who were female and presently receiving therapy. Overall reliability for the instrument is acceptable ( r = .77). These data reveal that adolescents are aware that their QoL is affected by cancer and its treatment. This instrument demonstrates scores that are statistically different (P = .000) between those presently receiving treatment compared with those not receiving treatment. Although not statistically significant, mean scores for females were lower than for males (P = .030), regardless of other variables. Further administration and psychometric testing of the instrument is planned.
本研究的目的是让患癌青少年能够自我评估其生活质量（QoL）。使用一种新开发的李克特量表式生活质量工具收集数据。此外，每位参与者可以就该变量如何影响其生活质量发表评论。人口统计学数据由参与者自行披露，以描述75名青少年（41名男性和34名女性）的样本群体。在可能的48分中，总体生活质量得分在27至48分之间（均值 = 41.27，标准差 = 4.31）。生活质量得分在目前正在接受治疗的女性中最低。该工具的总体信度可以接受（r = 0.77）。这些数据表明青少年意识到他们的生活质量受到癌症及其治疗的影响。该工具显示，目前正在接受治疗的青少年与未接受治疗的青少年之间的得分在统计学上存在差异（P = 0.000）。尽管在统计学上不显著，但无论其他变量如何，女性的平均得分低于男性（P = 0.030）。计划对该工具进行进一步的应用和心理测量测试。
