Anderzén-Carlsson Agneta, Kihlgren Mona, Svantesson Mia, Sørlie Venke
Centre for Health Care Sciences, Orebro University Hospital, Orebro, Sweden.
J Pediatr Nurs. 2007 Jun;22(3):233-44. doi: 10.1016/j.pedn.2007.03.003.
It is known that children with cancer experience and express fear, but little is found in the literature about how the parents experience their child's fear. This study aimed to highlight the parents' lived experience and understanding of their child's fear. Focus group interviews with 15 parents were performed. Data were analyzed through a phenomenological hermeneutic method. Fear in children with cancer is described by the parents as a multidimensional phenomenon, which is somehow difficult to identify. It appears in contrast to the absence of fear. The comprehensive understanding of the results reveals that the parents experience their children's fear as both a suffering and an ethical demand for the parents to answer.
众所周知，患癌儿童会经历并表达恐惧，但文献中很少提及父母如何感受孩子的恐惧。本研究旨在突出父母对孩子恐惧的亲身经历和理解。对15位父母进行了焦点小组访谈。通过现象学诠释学方法对数据进行了分析。父母将患癌儿童的恐惧描述为一种多维现象，在某种程度上难以识别。它与无恐惧的状态形成对比。对结果的全面理解表明，父母将孩子的恐惧体验为一种痛苦，同时也是对父母回应的一种道德要求。
