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采用创新方法和技术进行患者报告结局的测量与管理。

Patient-reported outcomes measurement and management with innovative methodologies and technologies.

作者信息

Chang Chih-Hung

机构信息

Buehler Center on Aging, Health & Society, Northwestern University Feinberg School of Medicine, 750 N. Lake Shore Drive, Suite 601, Chicago, IL 60611, USA.

出版信息

Qual Life Res. 2007;16 Suppl 1:157-66. doi: 10.1007/s11136-007-9196-2. Epub 2007 May 26.

DOI:10.1007/s11136-007-9196-2
PMID:17530448
Abstract

Successful integration of modern psychometrics and advanced informatics in patient-reported outcomes (PRO) measurement and management can potentially maximize the value of health outcomes research and optimize the delivery of quality patient care. Unlike the traditional labor-intensive paper-and-pencil data collection method, item response theory-based computerized adaptive testing methodologies coupled with novel technologies provide an integrated environment to collect, analyze and present ready-to-use PRO data for informed and shared decision-making. This article describes the needs, challenges and solutions for accurate, efficient and cost-effective PRO data acquisition and dissemination means in order to provide critical and timely PRO information necessary to actively support and enhance routine patient care in busy clinical settings.

摘要

将现代心理测量学与先进信息学成功整合到患者报告结局（PRO）的测量与管理中，有可能使健康结局研究的价值最大化，并优化优质患者护理的提供。与传统的劳动密集型纸笔数据收集方法不同，基于项目反应理论的计算机自适应测试方法与新技术相结合，提供了一个集成环境，用于收集、分析和呈现随时可用的PRO数据，以支持明智且共同参与的决策。本文描述了准确、高效且经济高效的PRO数据获取与传播方式的需求、挑战及解决方案，以便提供关键且及时的PRO信息，从而在繁忙的临床环境中积极支持并加强常规患者护理。

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Special issues for building computerized-adaptive tests for measuring patient-reported outcomes: the National Institute of Health's investment in new technology.构建用于测量患者报告结局的计算机自适应测试的特殊问题：美国国立卫生研究院在新技术方面的投资。
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Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance.行业指南：患者报告的结局指标：用于医疗产品开发以支持标签声明：指南草案
Health Qual Life Outcomes. 2006 Oct 11;4:79. doi: 10.1186/1477-7525-4-79.
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与美国参考值相比，特定国家/地区的 PROMIS 疼痛、身体功能和参与度测量的参考值。
Ann Med. 2023 Dec;55(1):1-11. doi: 10.1080/07853890.2022.2149849.
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Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS®.ICHOM 标准集中常见的患者报告结局： PROMIS® 的潜在贡献。
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