Winterling Jeanette, Glimelius Bengt, Nordin Karin
Department of Public Health and Caring Sciences, Section of Caring Sciences, Uppsala University, Sweden.
Psychooncology. 2008 Feb;17(2):190-8. doi: 10.1002/pon.1216.
The purpose was to study expectations concerning recovery-related changes in life, e.g. beliefs regarding future adjustment back to 'normal' life after curative cancer treatment, whether these expectations were met and their importance for both patients' and their spouses' quality of life and psychological distress. Sixty-two patients and 42 spouses took part in the study. Data on recovery-related expectations, measured using a study-specific questionnaire (RRE), on quality of life using EORTC-QLQ C-30 and on psychological distress using HADS, were collected directly after completion of treatment, four and 16 months later. Optimism was measured using LOT at the last follow-up. The results demonstrate that patients generally had higher recovery-related expectations than did their spouses, and their expectations were also fulfilled to a lesser degree at both follow-ups. However, the expectations, or whether these were met, were generally not associated with their quality of life or psychological distress. The few associations that were made indicated that fulfilled expectations meant higher quality of life and/or less distress. The participants' optimism was associated with both their quality of life and psychological distress. It is concluded that optimism influenced the participants' quality of life and psychological distress to a higher degree than did their recovery-related expectations.
目的是研究与康复相关的生活变化期望，例如关于癌症治愈性治疗后回归“正常”生活的未来调整的信念，这些期望是否得到满足以及它们对患者及其配偶的生活质量和心理困扰的重要性。62名患者和42名配偶参与了该研究。在治疗完成后、四个月和16个月后，直接收集了使用特定研究问卷（RRE）测量的与康复相关期望的数据、使用EORTC-QLQ C-30测量的生活质量数据以及使用HADS测量的心理困扰数据。在最后一次随访时使用LOT测量乐观程度。结果表明，患者总体上比其配偶有更高的与康复相关的期望，并且在两次随访中他们的期望实现程度也较低。然而，期望或期望是否得到满足通常与其生活质量或心理困扰无关。所发现的少数关联表明，期望实现意味着更高的生活质量和/或更少的困扰。参与者的乐观程度与其生活质量和心理困扰均相关。研究得出结论，乐观比与康复相关的期望对参与者的生活质量和心理困扰的影响程度更高。
