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患者对自身无助体验的看法。

The perspective of patients on their experience of powerlessness.

作者信息

Aujoulat Isabelle, Luminet Olivier, Deccache Alain

机构信息

Université Catholique de Louvain, Belgium.

出版信息

Qual Health Res. 2007 Jul;17(6):772-85. doi: 10.1177/1049732307302665.

Abstract

Although self-determination is a key issue in empowerment, the perspective of patients on their experience of empowerment has been poorly investigated. The authors have attempted to understand better what the process of empowerment means to patients by investigating the situations and feelings of powerlessness from which a process of empowerment might evolve. They conducted 40 interviews of patients with various chronic conditions and looked for the commonalities in their experiences of powerlessness. Their findings show that powerlessness extends well beyond strictly medical and treatment-related issues, as the study participants all expressed or demonstrated to have at some point or another experienced a distressing feeling of insecurity and a threat to their social and personal identities. The authors therefore suggest that an empowering provider-patient interaction should address these issues by providing for reassurance and opportunities for self-exploration as a prerequisite to participation and self-determination in treatment-related decisions.

摘要

虽然自我决定权是赋权过程中的关键问题,但患者对自身赋权体验的看法却鲜有研究。作者试图通过调查赋权过程可能由此演变而来的无助状况和感受,来更好地理解赋权过程对患者而言意味着什么。他们对患有各种慢性病的患者进行了40次访谈,并探寻他们无助体验中的共性。研究结果表明,无助感远远超出了严格意义上的医疗和治疗相关问题,因为研究参与者都表达过或表现出在某些时候经历过令人苦恼的不安全感以及对其社会和个人身份的威胁。因此,作者建议,赋权型的医患互动应通过提供 reassurance 和自我探索的机会来解决这些问题,这是参与治疗相关决策并实现自我决定权的前提条件。 (注:“reassurance”此处可能是“安慰、安心”之意,原文表述似有误,推测可能是“reassurance”。)

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