Meert Kathleen L, Eggly Susan, Pollack Murray, Anand K J S, Zimmerman Jerry, Carcillo Joseph, Newth Christopher J L, Dean J Michael, Willson Douglas F, Nicholson Carol
Children's Hospital of Michigan, Detroit, Michigan 48201, USA.
J Pediatr. 2007 Jul;151(1):50-5, 55.e1-2. doi: 10.1016/j.jpeds.2007.01.050.
To investigate parents' perspectives on the desirability, content, and conditions of a physician-parent conference after their child's death in the pediatric intensive care unit (PICU).
Audio-recorded telephone interviews were conducted with 56 parents of 48 children. All children died in the PICU of one of six children's hospitals in the National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network (CPCCRN) 3 to 12 months before the study.
Only seven (13%) parents had a scheduled meeting with any physician to discuss their child's death; 33 (59%) wanted to meet with their child's intensive care physician. Of these, 27 (82%) were willing to return to the hospital to meet. Topics that parents wanted to discuss included the chronology of events leading to PICU admission and death, cause of death, treatment, autopsy, genetic risk, medical documents, withdrawal of life support, ways to help others, bereavement support, and what to tell family. Parents sought reassurance and the opportunity to voice complaints and express gratitude.
Many bereaved parents want to meet with the intensive care physician after their child's death. Parents seek to gain information and emotional support, and to give feedback about their PICU experience.
探讨家长对于儿科重症监护病房（PICU）中孩子死亡后医患会议的必要性、会议内容及会议条件的看法。
对48名儿童的56位家长进行了电话录音访谈。所有儿童均于研究前3至12个月在国家儿童健康与人类发展研究所协作儿科重症监护研究网络（CPCCRN）的六家儿童医院之一的PICU死亡。
只有7名（13%）家长与任何医生安排了会议来讨论孩子的死亡；33名（59%）家长希望与孩子的重症监护医生会面。其中，27名（82%）愿意返回医院会面。家长们想要讨论的话题包括导致孩子入住PICU及死亡的事件时间顺序、死因、治疗、尸检、遗传风险、医疗文件、撤除生命支持、帮助他人的方式、丧亲之痛支持以及告知家人的内容。家长们寻求安慰以及表达抱怨和感激的机会。
许多痛失孩子的家长希望在孩子死后与重症监护医生会面。家长们寻求获取信息和情感支持，并就他们在PICU的经历提供反馈。
