Carey P J, Oberst M T, McCubbin M A, Hughes S H
University of Wisconsin-Madison.
Oncol Nurs Forum. 1991 Nov-Dec;18(8):1341-8.
The purposes of this exploratory study of 49 family caregivers of patients receiving chemotherapy were to describe the time and difficulty associated with caregiving tasks, examine caregivers' appraisals of their situations, and to explore what variables are predictive of caregiver mood. Measures used in this study included the Caregiving Burden Scale, Appraisal of Caregiving Scale, Family Hardiness Index, and an abbreviated form of the Profile of Mood States. Multiple regression was used to examine predictive relationships. The 25 women and 24 men reported spending the most time giving emotional support and assisting with household tasks, errands, and transportation. Giving emotional support was the most time-consuming and difficult task; therefore, it received the highest burden score. Burden was predicted by level of patient dependency. Caregiving burden, family hardiness, and caregiver health predicted 50% of the variance in negative appraisal of caregiving. Negative appraisal and age of the caregiver explained 49% of the variance in mood disturbance. Findings suggest that caregivers' appraisals of their situations may mediate the effects of illness and contextual factors on caregiver outcomes and that family hardiness is an important caregiver resource.
这项针对49名化疗患者家庭照顾者的探索性研究的目的是描述与照顾任务相关的时间和困难，考察照顾者对自身状况的评估，并探究哪些变量能够预测照顾者的情绪。本研究中使用的测量工具包括照顾负担量表、照顾评估量表、家庭坚韧性指数以及情绪状态剖面图的简化版。采用多元回归分析来检验预测关系。25名女性和24名男性报告称，他们花费在给予情感支持以及协助处理家务、跑腿和交通事务上的时间最多。给予情感支持是最耗时且最困难的任务；因此，它的负担得分最高。负担程度由患者的依赖程度预测。照顾负担、家庭坚韧性和照顾者健康状况能够预测照顾负面评估中50%的变异。照顾者的负面评估和年龄能够解释情绪困扰中49%的变异。研究结果表明，照顾者对自身状况的评估可能会调节疾病和情境因素对照顾者结果的影响，并且家庭坚韧性是一种重要的照顾者资源。
