Skinner Debra, Weisner Thomas S
FPG Child Development Institute, University of North Carolina, Chapel Hill, NC 27599-8180, USA.
Ment Retard Dev Disabil Res Rev. 2007;13(4):302-12. doi: 10.1002/mrdd.20170.
This article reviews recent sociocultural studies of families of children with intellectual disabilities to introduce the range of research conducted from this perspective and to highlight the methodological, conceptual, and theoretical contributions of this approach to the study of mental retardation. Sociocultural studies examine families within their cultural, historical, and sociopolitical contexts. This type of research is comparative across different cultural groups, but is not limited to such comparisons. Sociocultural studies use varied theories and methods, but they share a focus on families' coproduction of meanings and practices related to intellectual disability; families' responses and adaptations to disability; and how their understandings and experiences are shaped within larger social institutions and inequities. Sociocultural approaches take into account community contexts that matter to families with members with mental retardation or developmental delay, and they examine the broader systems that define and position individuals with disabilities and their families. As a whole, these studies provide a more experiential and holistic view of families' beliefs and adaptations within sociopolitical worlds, and offer new tools by which to study the families of children with developmental delays within and across different cultural groups.
本文回顾了近期关于智障儿童家庭的社会文化研究,以介绍从这一视角开展的一系列研究,并强调该方法在智力障碍研究方面的方法论、概念和理论贡献。社会文化研究在文化、历史和社会政治背景中审视家庭。这类研究在不同文化群体间进行比较,但不限于此类比较。社会文化研究运用多种理论和方法,但它们都聚焦于家庭对与智力障碍相关的意义和实践的共同建构;家庭对残疾的反应和适应;以及他们的理解和经历如何在更大的社会制度和不平等中形成。社会文化方法考虑到对有智障或发育迟缓成员的家庭至关重要的社区背景,并考察界定残疾人士及其家庭并使其定位的更广泛系统。总体而言,这些研究提供了对家庭在社会政治世界中的信念和适应的更具体验性和整体性的观点,并提供了新工具,用以研究不同文化群体内部及不同文化群体之间发育迟缓儿童的家庭。