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人们变得如此恐惧:拉丁裔家庭与哮喘管理——一项探索性研究。

One gets so afraid: Latino families and asthma management--an exploratory study.

作者信息

Berg Jill, Anderson Nancy Lois Ruth, Tichacek Mary J, Tomizh Alma C, Rachelefsky Gary

机构信息

University of California, 4-254 Factor Building, School of Nursing, Los Angeles, CA, USA.

出版信息

J Pediatr Health Care. 2007 Nov-Dec;21(6):361-71. doi: 10.1016/j.pedhc.2006.08.004.

Abstract

INTRODUCTION

This study explored Latino family experiences, issues, and needs in caring for a child with asthma as expressed by Latino parents of children with asthma.

METHODS

Eight families represented by 7 women and 2 men, primarily of Mexican descent, participated in the study. All families had at least one child enrolled in preschools in the East Los Angeles area. The study had an exploratory design and used ethnographic group and individual interview techniques to discover the parents' experiences in managing their child's asthma and the meaning asthma has for their families. All interviews were conducted in Spanish.

RESULTS

Several common themes emerged from the data: (a) fear, "I got scared"; (b) the acute care experience, "I was not told what to do, nothing"; (c) knowledge, "I did not know anything about asthma"; and (d) parent alternative strategies or strengths, "We want to do what is best. ... we need to be prepared."

DISCUSSION

Strength emerged from fear. The parents were resourceful and began developing alternative strategies to assist them in their care for their child with asthma. The findings emphasize the need for more opportunities for culturally sensitive asthma education and community health care resources such as mobile asthma treatment centers and promotora programs.

摘要

引言

本研究探讨了哮喘患儿的拉丁裔父母所表达的拉丁裔家庭在照顾哮喘患儿方面的经历、问题和需求。

方法

由7名女性和2名男性代表的8个家庭参与了研究,这些家庭主要为墨西哥裔。所有家庭至少有一个孩子在东洛杉矶地区的学前班就读。该研究采用探索性设计,运用人种学小组和个人访谈技巧,以了解父母在管理孩子哮喘方面的经历以及哮喘对其家庭的意义。所有访谈均用西班牙语进行。

结果

数据中出现了几个共同主题:(a)恐惧,“我吓坏了”;(b)急诊护理经历,“没人告诉我该怎么做,什么都没说”;(c)知识,“我对哮喘一无所知”;以及(d)父母的替代策略或优势,“我们想做最好的事情。……我们需要做好准备”。

讨论

力量源自恐惧。父母足智多谋,开始制定替代策略以帮助他们照顾哮喘患儿。研究结果强调需要有更多机会开展具有文化敏感性的哮喘教育以及提供社区医疗资源,如流动哮喘治疗中心和健康促进员项目。

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