Kieckhefer G M, Ratcliffe M
Family and Child Nursing, University of Washington, Seattle, USA.
J Pediatr Health Care. 2000 May-Jun;14(3):122-6.
The family's contribution to effective asthma management is increasingly being recognized. This study gathered and analyzed information from parents about their greatest fears relative to having a child with asthma and identified information that parents believed was critical for providers to acknowledge. The methodology serves as a model for possible practitioner-directed action research with their care population.
Written information from 52 parents who attended focus groups comprise the data. Data were analyzed using constant comparative strategies.
Common parental fears included uncertainty, long-term effects of medication, and concern that the condition would not go away or improve. Common themes parents wanted providers to know included the following: parents need more information; parents are scared and fearful; living with asthma is difficult, and this stress affects the parents' behavior; and parents know what is best for their child. Age trends were identified for fear themes only.
Findings suggest parents can and should be asked about their greatest fears and concerns. Although developmental patterns may be used to initiate discussion, providers need to identify parents' unique concerns so they can integrate them in refining the child's asthma action plan.
家庭对有效管理哮喘的贡献日益受到认可。本研究收集并分析了家长们关于孩子患哮喘的最大担忧的信息，并确定了家长们认为医疗服务提供者必须了解的信息。该方法为从业者针对其护理人群开展行动研究提供了一个范例。
参加焦点小组的52位家长提供的书面信息构成了数据。使用持续比较策略对数据进行分析。
家长们常见的担忧包括不确定性、药物的长期影响以及担心病情不会好转或改善。家长们希望医疗服务提供者了解的常见主题如下：家长需要更多信息；家长感到害怕和恐惧；与哮喘共存很困难，这种压力会影响家长的行为；以及家长知道什么对自己的孩子最有利。仅针对恐惧主题确定了年龄趋势。
研究结果表明，可以且应该询问家长他们最大的恐惧和担忧。虽然可以利用发育模式开启讨论，但医疗服务提供者需要确定家长独特的担忧，以便将其纳入完善儿童哮喘行动计划的过程中。
