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从 bereaved family member 的角度来看,有助于评估善终的因素。 (注:bereaved family member 直译为“失去亲人的家庭成员”,这里意译为“丧亲家属”更符合语境)

Factors contributing to evaluation of a good death from the bereaved family member's perspective.

作者信息

Miyashita Mitsunori, Morita Tatsuya, Sato Kazuki, Hirai Kei, Shima Yasuo, Uchitomi Yosuke

机构信息

Department of Adult Nursing/Palliative Care Nursing, School of Health Sciences and Nursing, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan.

出版信息

Psychooncology. 2008 Jun;17(6):612-20. doi: 10.1002/pon.1283.

Abstract

BACKGROUND

Although it is important to achieve a good death in Japan, there have been no studies to explore factors associated with a good death. The aim of this study was to explore factors contributing to a good death from the bereaved family members' perspectives, including patient and family demographics and medical variables.

METHODS

A cross-sectional anonymous questionnaire survey for bereaved family members of cancer patients who had died in a regional cancer center and a medical chart review were conducted. We measured the results from the Good Death Inventory and family demographics. In addition, we extracted patient demographics, medical variables, and medical interventions in the last 48 h before death from a medical chart review.

RESULTS

Of the 344 questionnaires sent to bereaved family members, 165 responses were analyzed (48%). We found, first, that death in the palliative care unit was more likely to be described as a good death compared with death on a general ward. Some significant characteristics were 'environmental comfort,' 'physical and psychological comfort,' 'being respected as an individual,' and 'natural death.' Second, we found that a patient's and family member's age and other demographic factors significantly correlated with an evaluation of a good death. In addition, life prolongation treatment and aggressive treatment such as chemotherapy in the last 2 weeks of life were barriers to attainment of a good death. Moreover, appropriate opioid medication contributed to a good death.

CONCLUSION

Withholding aggressive treatment and life-prolonging treatment for dying patients and appropriate opioid use may be associated with achievement of a good death in Japan.

摘要

背景

在日本,实现善终很重要,但尚无研究探讨与善终相关的因素。本研究旨在从遗属的角度探讨促成善终的因素,包括患者及家庭人口统计学特征和医疗变量。

方法

对在某地区癌症中心去世的癌症患者的遗属进行了横断面匿名问卷调查,并进行了病历回顾。我们测量了善终量表的结果以及家庭人口统计学特征。此外,我们从病历回顾中提取了患者的人口统计学特征、医疗变量以及死亡前最后48小时的医疗干预措施。

结果

在向遗属发送的344份问卷中,分析了165份回复(48%)。首先,我们发现与在普通病房死亡相比,在姑息治疗病房死亡更有可能被描述为善终。一些显著特征包括“环境舒适”“身心舒适”“被尊重为个体”以及“自然死亡”。其次,我们发现患者和家庭成员的年龄及其他人口统计学因素与善终评估显著相关。此外,在生命的最后2周进行的延长生命治疗和积极治疗(如化疗)是实现善终的障碍。而且,适当使用阿片类药物有助于善终。

结论

在日本,对临终患者停止积极治疗和延长生命的治疗以及适当使用阿片类药物可能与实现善终有关。

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