Gallo Agatha M, Hadley Emily K, Angst Denise B, Knafl Kathleen A, Smith Carrol A M
Department of Maternal Child Nursing, College of Nursing, University of Illinois at Chicago, Chicago, IL, USA.
J Spec Pediatr Nurs. 2008 Jan;13(1):4-14. doi: 10.1111/j.1744-6155.2008.00129.x.
The purpose of this analysis was to examine parents' (N = 142) concerns about issues (i.e., privacy of information, insurance, healthcare costs, employment, school) related to their children's genetic conditions.
Using a series of matrices, thematic analysis was conducted focusing on parents' concerns.
Parents were less concerned with privacy and more concerned with insurance, healthcare costs, employment, and school issues.
Nurses and other healthcare professionals need to give parents the opportunity to discuss their concerns and to assist parents with strategies and resources to meet the needs of their children and families.
本分析的目的是研究142名家长对与子女遗传状况相关问题（即信息隐私、保险、医疗费用、就业、学校）的担忧。
使用一系列矩阵，针对家长的担忧进行了主题分析。
家长对隐私的担忧较少，而对保险、医疗费用、就业和学校问题更为担忧。
护士和其他医疗保健专业人员需要为家长提供机会，让他们讨论自己的担忧，并协助家长制定策略和提供资源，以满足其子女和家庭的需求。
