Kurz Ashley E, Saint-Louis Nicole, Burke Janice P, Stineman Margaret G
University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Qual Health Res. 2008 Jan;18(1):90-105. doi: 10.1177/1049732307309006.
People experiencing disability and chronic disease often feel powerless, relinquishing medical control to "more knowledgeable" professionals. This article presents qualitative and quantitative results from three individual patients experiencing an emerging procedure called Recovery Preference Exploration (RPE). To inspire greater patient involvement, self-direction, and individual choice, we instructed participants to create an imagined recovery path, exposing recovery preferences while learning about clinical rehabilitation concepts. Results uncovered important values and feelings about disability, providing a richer context for patient evaluation and treatment goal modification. Applying mixed methods, RPE is presented as an explanatory process for quantifying recovery preferences in a way that stimulates rich narrative of how people see different types of disabilities. RPE shows promise for increasing depth of discussions among patients, family, and clinicians. RPE may promote greater quality of life through patient empowerment by directed learning, increased communication, and enhanced self-knowledge.
患有残疾和慢性病的人常常感到无力，将医疗控制权交给“更有知识”的专业人员。本文展示了三位经历一种名为恢复偏好探索（RPE）的新兴程序的个体患者的定性和定量结果。为了激发患者更大程度的参与、自我指导和个人选择，我们指导参与者创建一条想象中的康复路径，在了解临床康复概念的同时揭示恢复偏好。结果揭示了关于残疾的重要价值观和感受，为患者评估和治疗目标调整提供了更丰富的背景。应用混合方法，RPE被呈现为一种解释过程，用于以一种激发人们对不同类型残疾看法的丰富叙述的方式量化恢复偏好。RPE有望加深患者、家庭和临床医生之间的讨论深度。RPE可能通过定向学习、增加沟通和增强自我认知来赋予患者权力，从而提高生活质量。
