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患者对康复的看法:一种通过自我认知实现赋权的新兴工具。

The patient's view of recovery: an emerging tool for empowerment through self-knowledge.

作者信息

Stineman Margaret G, Kurz Ashley E, Kelleher Deirdre, Kennedy Bonnie L

机构信息

Department of Physical Medicine and Rehabilitation, University of Pennsylvania, USA.

出版信息

Disabil Rehabil. 2008;30(9):679-88. doi: 10.1080/09638280701456112.

DOI:10.1080/09638280701456112
PMID:17852255
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2896255/
Abstract

PURPOSE

To introduce Recovery Preference Exploration (RPE) as a new technique for studying the personal significance of being able to perform one type of functional activity over others. To determine if patients' concepts of function reflect the ADL, sphincter management, mobility and cognition (ASMC) domains established through the factor analyses of observed patient performance.

METHODS

RPE involves an adapted card sort procedure. Patients sorted 18 cards each listing a single functional skill such as eating, walking, and memory into subjectively meaningful groups of activities based on how they see those skills relating to one another in their daily lives. They then ordered the groups from most to least important. Recovery preferences were explored for 32 patients with disabilities resulting from neurological or other conditions undergoing inpatient rehabilitation in the USA.

RESULTS

The abilities to eat, bathe and toilet were the activities most frequently placed in the most valued pile. At times, the patient's card sorts mirrored the ASMC domains. At other times, patients grouped activities that tended to occur in a particular place or that were linked through cause and effect. Patients' narrative explanations reflected the uniqueness of their personal circumstances.

CONCLUSIONS

RPE uncovers the life contexts that underlie patients' subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.

摘要

目的

引入恢复偏好探索(RPE)作为一种新技术,用于研究能够进行一种功能活动而非其他活动的个人意义。确定患者的功能概念是否反映了通过对观察到的患者表现进行因素分析所确立的日常生活活动、括约肌管理、移动性和认知(ASMC)领域。

方法

RPE涉及一种经过调整的卡片分类程序。患者将18张卡片(每张卡片列出一项单一功能技能,如进食、行走和记忆)根据他们在日常生活中对这些技能相互关系的看法,分类为主观上有意义的活动组。然后,他们将这些组按重要性从高到低排序。对美国32名因神经或其他疾病导致残疾且正在接受住院康复治疗的患者进行了恢复偏好探索。

结果

进食、洗澡和上厕所的能力是最常被放在最有价值一堆的活动。有时,患者的卡片分类反映了ASMC领域。在其他时候,患者将倾向于在特定地点发生或通过因果关系联系在一起的活动归为一组。患者的叙述性解释反映了他们个人情况的独特性。

结论

RPE揭示了患者关于能够进行各种活动的意义的主观信念背后的生活背景。RPE可应用于临床实践和研究,以探索残疾的特殊方面。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/41f9/2896255/6b1b51ee1c8e/nihms162273f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/41f9/2896255/d20fa78d9c51/nihms162273f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/41f9/2896255/6b1b51ee1c8e/nihms162273f2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/41f9/2896255/d20fa78d9c51/nihms162273f1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/41f9/2896255/6b1b51ee1c8e/nihms162273f2.jpg

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