Williams Brian, Entwistle Vikki, Haddow Gill, Wells Mary
Social Dimensions of Health Institute, Universities of Dundee & St Andrews, Dundee, UK.
Soc Sci Med. 2008 Apr;66(7):1451-6. doi: 10.1016/j.socscimed.2007.12.013. Epub 2008 Jan 28.
Participation rates have a major impact on the quality, cost and timeliness of health research. There is growing evidence that participation rates may be falling and that new research governance structures and procedures may be increasing the likelihood of recruitment bias. It may be possible to encourage public reflection about research participation and enhance recruitment by providing information about the potential benefits of research to others as well as to research participants and by stimulating debate and influencing social expectations about involvement. Publicly funded and charitable bodies use various forms of advertising to encourage altruistic behaviour and generate social expectations about donating money, blood and organs for the benefit of others. Consideration should be given to the use of similar persuasive communications to promote wider participation in health research generally.
参与率对健康研究的质量、成本和及时性有着重大影响。越来越多的证据表明，参与率可能正在下降，新的研究治理结构和程序可能会增加招募偏差的可能性。通过向研究参与者以及其他可能受益的人提供有关研究潜在益处的信息，并激发辩论和影响社会对参与研究的期望，有可能鼓励公众对研究参与进行反思并提高招募率。公共资助机构和慈善机构利用各种形式的广告来鼓励利他行为，并营造关于为他人利益捐款、献血和捐献器官的社会期望。应该考虑使用类似的有说服力的宣传方式来普遍促进更广泛地参与健康研究。
