Sepulveda Ana Rosa, Lopez C, Todd G, Whitaker W, Treasure J
Psychological Medicine Dept., King's College of London, Institute of Psychiatry, Guys Hospital, 5th Floor Thomas Guy House, London, SE1 9RT, UK.
Soc Psychiatry Psychiatr Epidemiol. 2008 Jul;43(7):584-91. doi: 10.1007/s00127-008-0336-y. Epub 2008 Mar 22.
Carers of people with eating disorders experience high levels of distress due to the difficulties in their care giving role and their perceived lack of resources to help their relative. This paper describes an intervention where some of the skills used by specialist nurses and other staff from an eating disorder intensive care setting are taught to carers to improve their sense of competency and alleviate their distress. The aim of this study was to examine the feasibility and acceptability of "the Maudsley eating disorder collaborative care skills workshops" programme among care givers and whether the difficulties and distress involved in caring for a person with an eating disorder were reduced.
Thirty-five carers from 30 families were invited to participate in this programme, which consisted of a total of six workshops, delivered in 2-h sessions over 3 months. Assessments were undertaken at baseline (T0), at the end of the workshops (T1) and 3 months later (T2).
The level of carer distress (GHQ) fell significantly after the intervention. The level of general care giving burden (ECI) also reduced as did the specific difficulties caused by eating disorder symptoms (EDSIS). These changes were maintained over time (T2).
The transfer of specialist skills within the programme was highly valued by the carers and lessened their stress and care giving difficulties.
饮食失调患者的照料者由于照料角色的困难以及他们认为缺乏帮助亲属的资源而经历高度痛苦。本文描述了一种干预措施，即向照料者传授饮食失调重症监护环境中的专科护士和其他工作人员所使用的一些技能，以提高他们的能力感并减轻他们的痛苦。本研究的目的是检验“莫兹利饮食失调协作护理技能工作坊”项目在照料者中的可行性和可接受性，以及照料饮食失调患者所涉及的困难和痛苦是否有所减少。
邀请了来自30个家庭的35名照料者参加该项目，该项目总共包括六个工作坊，在3个月内以2小时的课程形式进行。在基线（T0）、工作坊结束时（T1）和3个月后（T2）进行评估。
干预后照料者的痛苦程度（GHQ）显著下降。一般照料负担水平（ECI）以及饮食失调症状导致的特定困难（EDSIS）也有所降低。这些变化随着时间推移（T2）得以维持。
该项目中专科技能的传授受到照料者的高度重视，并减轻了他们的压力和照料困难。
