Hall Bronwyn, Howard Kirsten, McCaffery Kirsten
Screening and Test Evaluation Program, School of Public Health, University of Sydney, Australia.
Patient Educ Couns. 2008 Jul;72(1):78-87. doi: 10.1016/j.pec.2008.01.024. Epub 2008 Mar 26.
New human papillomavirus (HPV) DNA technologies for the detection and prevention of cervical cancer have led to exciting changes in cervical cancer screening worldwide. Their introduction, however, has left many women with unanswered medical and psychosocial HPV questions. This study considered the degree to which women's own HPV questions were addressed in Australian cervical cancer screening patient information leaflets.
Based on previous qualitative research that asked women to identify their own HPV information needs, categories of interest were identified and a coding framework was developed. Manifest content analysis was conducted by counting the number of times a category of interest was stated in the text of the patient information leaflets (n=75). Latent content analysis methodology was employed to assess the underlying and embedded meaning within the leaflets.
Women's medical questions were addressed more frequently than psychosocial ones. Leaflets were designed for specific target audiences (Aboriginal, lesbian, older women, women with disabilities, HPV-specific, cervical cancer-specific and general Pap screening) and the type and amount of HPV information varied by group. Merging the manifest and latent results, we identified three broad themes for discussion: the medicalisation of women's cervical screening experience, the purpose and target audience of cervical screening leaflets and HPV as a community versus women's health issue.
Women's questions on HPV were inconsistently and often inadequately answered.
In order that women's information needs are met, more accurate and balanced representations of medical and psychosocial HPV information should be provided in patient information leaflets.
用于检测和预防宫颈癌的新型人乳头瘤病毒(HPV)DNA技术已在全球范围内引发了宫颈癌筛查方面令人兴奋的变革。然而,这些技术的引入使许多女性在医学和社会心理方面的HPV问题得不到解答。本研究考察了澳大利亚宫颈癌筛查患者信息手册中对女性自身HPV问题的解答程度。
基于之前一项定性研究,该研究要求女性确定她们自己的HPV信息需求,确定了感兴趣的类别并制定了编码框架。通过统计患者信息手册文本(n = 75)中提及感兴趣类别的次数进行显性内容分析。采用潜在内容分析方法评估手册中的潜在和内在含义。
女性的医学问题比社会心理问题得到更频繁的解答。手册是为特定目标受众(原住民、女同性恋者、老年女性、残疾女性、特定HPV人群、特定宫颈癌人群和一般巴氏筛查人群)设计的,HPV信息的类型和数量因群体而异。综合显性和潜在结果,我们确定了三个广泛的讨论主题:女性宫颈癌筛查经历的医学化、宫颈癌筛查手册的目的和目标受众以及HPV作为一个社区问题与女性健康问题。
女性关于HPV的问题解答不一致且往往不充分。
为了满足女性的信息需求,应在患者信息手册中提供更准确和平衡的医学及社会心理HPV信息表述。