McCulloch Renée, Comac Maggie, Craig Finella
Paediatric Palliative Care Team, Great Ormond Street Hospital for Children, Great Ormond Street, London.
Eur J Cancer. 2008 May;44(8):1139-45. doi: 10.1016/j.ejca.2008.02.048. Epub 2008 Apr 11.
Palliative care in children has been emerging as a clinical subspecialty of paediatrics for many years. It requires the knowledge and experience of a paediatrician, combined with the skills of a palliative care specialist. Both are essential, as a paediatrician may not have advanced knowledge of palliative care and a palliative care specialist is unlikely to be familiar with the complexity of working with families where the child is the patient. This paper reviews recent literature and discusses advances in the development of palliative care services for children and young people with incurable cancer. It highlights key areas where paediatric palliative care differs from that of adults and outlines the barriers to providing palliation and conducting evidence-based research in children and young people dying from cancer.
多年来,儿童姑息治疗已逐渐成为儿科学的一个临床亚专业。它需要儿科医生的知识和经验,再结合姑息治疗专家的技能。这两者都至关重要,因为儿科医生可能没有姑息治疗的先进知识,而姑息治疗专家不太可能熟悉与以儿童为患者的家庭打交道的复杂性。本文回顾了近期文献,并讨论了为患有不治之症的儿童和青少年提供姑息治疗服务的发展进展。它突出了儿童姑息治疗与成人姑息治疗不同的关键领域,并概述了在为死于癌症的儿童和青少年提供姑息治疗及开展循证研究方面存在的障碍。