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他们无法拒绝的提议:父母与围产期治疗决策

The offer they can't refuse: parents and perinatal treatment decisions.

作者信息

Harrison Helen

出版信息

Semin Fetal Neonatal Med. 2008 Oct;13(5):329-34. doi: 10.1016/j.siny.2008.03.004. Epub 2008 May 16.

Abstract

Despite a widespread myth of parental autonomy in decision-making for extremely preterm neonates, families in the United States are often not given access to accurate information about the consequences of preterm birth, resuscitation and treatment, or about their ethical options. Professional, philosophical, and financial incentives for hospitals and neonatologists to provide intensive treatment may trump parental wishes in delivery rooms and neonatal units. Parents may also be intimidated by the atmosphere of intensive care and by the behavior of committed staff. Prenatal advance directives allow parents to receive information on outcomes, treatments, and options, including palliative care, 'on their own turf' and as a part of routine prenatal counseling. The use of directives and other techniques for transparency in obstetric and neonatal care could improve the process of informed parental choice.

摘要

尽管对于极早产儿的决策存在一种普遍的关于父母自主权的误解,但在美国,家庭往往无法获得关于早产、复苏和治疗后果,或关于其伦理选择的准确信息。医院和新生儿科医生提供强化治疗的专业、哲学和经济动机,可能会在产房和新生儿病房中凌驾于父母的意愿之上。父母也可能会被重症监护的氛围和敬业的医护人员的行为所吓倒。产前预先指示使父母能够在自己熟悉的环境中,并作为常规产前咨询的一部分,获得关于预后、治疗和选择的信息,包括姑息治疗。在产科和新生儿护理中使用指示和其他提高透明度的技术,可以改善父母做出明智选择的过程。

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