Vasilescu Sorin, Vasilescu Diana Iulia, Dan Adriana Mihaela, Munteanu Octavian, Enyedi Mihaly, Slavu Iulian M, Cirstoiu Monica Mihaela
Department of Obstetrics, Gynecology, and Neonatology, University Emergency Hospital Bucharest, Bucharest, ROU.
Department of Medicine, Carol Davila University of Medicine and Pharmacy, Bucharest, ROU.
Cureus. 2024 Sep 3;16(9):e68532. doi: 10.7759/cureus.68532. eCollection 2024 Sep.
Congenital heart disease (CHD) is a common and significant congenital disorder. Despite advancements in neonatal care, Congenital heart disease remains a leading cause of death among infants with congenital malformations. Congenital heart disease is responsible for a significant portion of stillbirths and includes several forms with various anatomical variations. A CHD diagnosis leads to significant emotional distress for parents, affecting family dynamics and quality of life. Parents often experience psychological impacts, such as anxiety, depression, and guilt, particularly when diagnoses occur after birth. This literature review explores the psychosocial impact of CHD on families and examines how the timing of diagnosis influences outcomes. Parents face numerous challenges, including managing complex medical care and addressing financial and emotional burdens. Effective communication between healthcare providers and families is crucial, as is providing continuous emotional support and counseling. Early psychological interventions can alleviate depression and anxiety, and pediatric psychologists play a significant role in reducing the negative long-term effects on neurodevelopment. Further research is needed to develop strategies to improve mental health services and enhance the quality of life for families affected by CHD.
先天性心脏病(CHD)是一种常见且严重的先天性疾病。尽管新生儿护理有所进步,但先天性心脏病仍是先天性畸形婴儿死亡的主要原因。先天性心脏病导致了相当一部分死产,并且包括几种具有不同解剖变异的类型。先天性心脏病的诊断会给父母带来巨大的情绪困扰,影响家庭动态和生活质量。父母经常会经历心理影响,如焦虑、抑郁和内疚,尤其是在出生后确诊时。这篇文献综述探讨了先天性心脏病对家庭的心理社会影响,并研究了诊断时机如何影响结果。父母面临众多挑战,包括管理复杂的医疗护理以及应对经济和情感负担。医疗服务提供者与家庭之间的有效沟通至关重要,持续提供情感支持和咨询也同样重要。早期心理干预可以减轻抑郁和焦虑,儿科心理学家在减少对神经发育的长期负面影响方面发挥着重要作用。需要进一步研究以制定改善心理健康服务的策略,并提高受先天性心脏病影响家庭的生活质量。