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本文引用的文献

1
Role of Psychologists in Pediatric Congenital Heart Disease.儿科先天性心脏病中的心理学家角色。
Pediatr Clin North Am. 2022 Oct;69(5):865-878. doi: 10.1016/j.pcl.2022.05.002.
2
Psychological distress, dyadic adjustment and family dynamics after prenatal diagnosis of congenital heart disease.先天性心脏病产前诊断后心理困扰、婚姻调适和家庭动力学。
An Pediatr (Engl Ed). 2022 Sep;97(3):179-189. doi: 10.1016/j.anpede.2021.08.001. Epub 2021 Sep 17.
3
Fathers of Children With Congenital Heart Disease: Sources of Stress and Opportunities for Intervention.先天性心脏病患儿的父亲:压力来源与干预机会
Pediatr Crit Care Med. 2020 Nov;21(11):e1002-e1009. doi: 10.1097/PCC.0000000000002388.
4
Incidence and mortality trend of congenital heart disease at the global, regional, and national level, 1990-2017.1990 - 2017年全球、区域和国家层面先天性心脏病的发病率和死亡率趋势
Medicine (Baltimore). 2020 Jun 5;99(23):e20593. doi: 10.1097/MD.0000000000020593.
5
Global, regional, and national burden of congenital heart disease, 1990-2017: a systematic analysis for the Global Burden of Disease Study 2017.全球、地区和国家先天性心脏病负担,1990-2017 年:2017 年全球疾病负担研究的系统分析。
Lancet Child Adolesc Health. 2020 Mar;4(3):185-200. doi: 10.1016/S2352-4642(19)30402-X. Epub 2020 Jan 21.
6
Behaviour and emotions of children and young people with congenital heart disease: A literature review.先天性心脏病患儿和青少年的行为和情绪:文献综述。
J Child Health Care. 2020 Jun;24(2):317-332. doi: 10.1177/1367493519878550. Epub 2019 Sep 30.
7
Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice.先天性心脏病患儿父母在重症监护病房住院期间的心理健康护理:系统评价和最佳实践声明。
Early Hum Dev. 2019 Dec;139:104837. doi: 10.1016/j.earlhumdev.2019.104837. Epub 2019 Aug 24.
8
Reducing toxic stress in the neonatal intensive care unit to improve infant outcomes.减少新生儿重症监护病房的毒性应激以改善婴儿结局。
Nurs Outlook. 2019 Mar-Apr;67(2):169-189. doi: 10.1016/j.outlook.2018.11.002. Epub 2018 Nov 22.
9
Anxiety of mothers of newborns with congenital malformations in the pre- and postnatal periods.先天性畸形新生儿母亲在产前和产后阶段的焦虑情绪。
Rev Lat Am Enfermagem. 2018 Nov 14;26:e3080. doi: 10.1590/1518-8345.2482.3080.
10
Maternal Anxiety During Pregnancy and the Association With Adverse Perinatal Outcomes: Systematic Review and Meta-Analysis.孕期母亲焦虑与不良围产结局的关联:系统评价和荟萃分析。
J Clin Psychiatry. 2018 Sep 4;79(5):17r12011. doi: 10.4088/JCP.17r12011.

先天性心脏病新生儿对父母心理社会影响的综合综述:低收入和中等收入国家的一个重大问题。

Comprehensive Review of the Psychosocial Impact on Parents of Newborns With Congenital Heart Disease: A Significant Problem in Low- and Middle-Income Countries.

作者信息

Vasilescu Sorin, Vasilescu Diana Iulia, Dan Adriana Mihaela, Munteanu Octavian, Enyedi Mihaly, Slavu Iulian M, Cirstoiu Monica Mihaela

机构信息

Department of Obstetrics, Gynecology, and Neonatology, University Emergency Hospital Bucharest, Bucharest, ROU.

Department of Medicine, Carol Davila University of Medicine and Pharmacy, Bucharest, ROU.

出版信息

Cureus. 2024 Sep 3;16(9):e68532. doi: 10.7759/cureus.68532. eCollection 2024 Sep.

DOI:10.7759/cureus.68532
PMID:39364504
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11448743/
Abstract

Congenital heart disease (CHD) is a common and significant congenital disorder. Despite advancements in neonatal care, Congenital heart disease remains a leading cause of death among infants with congenital malformations. Congenital heart disease is responsible for a significant portion of stillbirths and includes several forms with various anatomical variations. A CHD diagnosis leads to significant emotional distress for parents, affecting family dynamics and quality of life. Parents often experience psychological impacts, such as anxiety, depression, and guilt, particularly when diagnoses occur after birth. This literature review explores the psychosocial impact of CHD on families and examines how the timing of diagnosis influences outcomes. Parents face numerous challenges, including managing complex medical care and addressing financial and emotional burdens. Effective communication between healthcare providers and families is crucial, as is providing continuous emotional support and counseling. Early psychological interventions can alleviate depression and anxiety, and pediatric psychologists play a significant role in reducing the negative long-term effects on neurodevelopment. Further research is needed to develop strategies to improve mental health services and enhance the quality of life for families affected by CHD.

摘要

先天性心脏病(CHD)是一种常见且严重的先天性疾病。尽管新生儿护理有所进步,但先天性心脏病仍是先天性畸形婴儿死亡的主要原因。先天性心脏病导致了相当一部分死产,并且包括几种具有不同解剖变异的类型。先天性心脏病的诊断会给父母带来巨大的情绪困扰,影响家庭动态和生活质量。父母经常会经历心理影响,如焦虑、抑郁和内疚,尤其是在出生后确诊时。这篇文献综述探讨了先天性心脏病对家庭的心理社会影响,并研究了诊断时机如何影响结果。父母面临众多挑战,包括管理复杂的医疗护理以及应对经济和情感负担。医疗服务提供者与家庭之间的有效沟通至关重要,持续提供情感支持和咨询也同样重要。早期心理干预可以减轻抑郁和焦虑,儿科心理学家在减少对神经发育的长期负面影响方面发挥着重要作用。需要进一步研究以制定改善心理健康服务的策略,并提高受先天性心脏病影响家庭的生活质量。