Zebrack Brad
School of Social Work, University of Southern California, 669 W. 34th St., Los Angeles, CA 90089-0411, USA.
Support Care Cancer. 2009 Apr;17(4):349-57. doi: 10.1007/s00520-008-0469-2. Epub 2008 Jun 10.
The intent of this study was to examine supportive care needs and preferences among young adult cancer survivors.
Eight hundred seventy-nine young adults aged 18-39 years at time of study and diagnosed with cancer between the ages of 15-35 completed an online survey. Questions assessed the extent to which subjects had utilized various information and supportive care services and/or expressed a desire to use those services either now or in the past.
Upwards of 60% of respondents expressed a desire or need for age-appropriate cancer information, information about diet, exercise, nutrition, complementary and alternative health services, infertility information, mental health counseling, and camp or retreat programs for young adults. In most cases, more than 50% of respondents indicated that their needs for information and services have been unmet. In addition, unmet needs were more likely reported by respondents who were younger at age of diagnosis, of poor physical health status, and less likely to be advanced in work, school, or a committed/marital relationship. Other significant differences in unmet need were observed across sociodemographic and health status variables.
Findings suggest a need to enhance the provision of supportive care services to adolescent and young adult cancer survivors along a continuum of care, from diagnosis through treatment and on to off-treatment survivorship.
本研究旨在调查年轻成年癌症幸存者的支持性护理需求和偏好。
879名在研究时年龄为18 - 39岁且在15 - 35岁之间被诊断患有癌症的年轻人完成了一项在线调查。问题评估了受试者利用各种信息和支持性护理服务的程度，以及他们现在或过去表达的使用这些服务的愿望。
超过60%的受访者表示希望或需要获得适合其年龄的癌症信息、饮食、运动、营养、补充和替代健康服务、不孕信息、心理健康咨询以及针对年轻人的营地或休养项目等信息。在大多数情况下，超过50%的受访者表示他们对信息和服务的需求未得到满足。此外，诊断时年龄较小、身体健康状况较差、在工作、学业或恋爱/婚姻关系中进展较不顺利的受访者更有可能报告需求未得到满足。在社会人口统计学和健康状况变量方面也观察到了未满足需求的其他显著差异。
研究结果表明，有必要在从诊断到治疗再到治疗后生存的连续护理过程中，加强为青少年和年轻成年癌症幸存者提供支持性护理服务。
