Ferreira Jorge, Silveira Pedro, Marques J Agostinho
Serviço de Pneumologia, Hospital Pedro Hispano, Unidade Local de Saúde de Matosinhos, Pulmonology Unit, Hospital Pedro Hispano, Unidade Local de Saúde de Matosinhos.
Rev Port Pneumol. 2008 Jul-Aug;14(4):459-86.
The Portuguese version of the Marks Asthma Quality of Life Questionnaire (AQLQ-M) has already proven to have good diagnostic properties, and is suitable for use with Portuguese asthma patients. The last forty years have seen a worldwide rise in the rate, morbidity, mortality and economic burden associated with asthma and the disease continues to be underdiagnosed and undertreated. In this study the AQLQ-M was administered to 826 asthmatic patients from continental Portugal (97.9% Caucasian, mean age 40.5 years, 30.2% male, 69.8% female), followed up by pulmonologists and allergologists. Patients were classified in line with the Global Initiative for Asthma (GINA) severity categories: 40.5% intermittent asthma, 26.9% mild persistent, 21.4% moderate persistent, 11.2% severe persistent. AQLQ-M scores maintained significant relationships with asthma severity, symptoms and lung function. Most of the patients were not managed and 74.6% were observed in an emergency room during last year. Women reported poorer QoL than men in all the questionnaire's subscales. Surprisingly, smokers presented better QoL than non-smokers. The results of this study evidence that the Portuguese version of the AQLQ-M is a useful instrument for measuring health-related quality of life in adults with asthma.
《马克斯哮喘生活质量问卷》（AQLQ-M）的葡萄牙语版本已被证明具有良好的诊断特性，适用于葡萄牙哮喘患者。在过去四十年中，全球哮喘的发病率、患病率、死亡率和经济负担都有所上升，而且该疾病仍然诊断不足和治疗不足。在这项研究中，AQLQ-M被应用于来自葡萄牙大陆的826名哮喘患者（97.9%为白种人，平均年龄40.5岁，男性占30.2%，女性占69.8%），由肺科医生和过敏症专科医生进行随访。患者根据全球哮喘防治创议（GINA）的严重程度分类：40.5%为间歇性哮喘，26.9%为轻度持续性哮喘，21.4%为中度持续性哮喘，11.2%为重度持续性哮喘。AQLQ-M评分与哮喘严重程度、症状和肺功能保持着显著关系。大多数患者未得到妥善管理，并且去年有74.6%的患者在急诊室接受观察。在问卷的所有子量表中，女性报告的生活质量比男性差。令人惊讶的是，吸烟者的生活质量比不吸烟者更好。这项研究的结果证明，AQLQ-M的葡萄牙语版本是测量成年哮喘患者健康相关生活质量的有用工具。
