Nápoles-Springer Anna M, Ortíz Carmen, O'Brien Helen, Díaz-Méndez Marynieves, Pérez-Stable Eliseo J
Medical Effectiveness Research Center for Diverse Populations, Division of General Internal Medicine, Department of Medicine, University of California San Francisco, 3333 California Street, San Francisco, CA 94118-1944, USA.
J Cancer Surviv. 2007 Sep;1(3):193-204. doi: 10.1007/s11764-007-0029-7.
Although Latina women diagnosed with breast cancer may be at greater risk of psychosocial morbidity compared to white women, few utilize support services such as support groups. Reasons for this under-use among Latinas are unknown.
A cross-sectional telephone survey examined the association of predisposing, enabling, and need factors with use of cancer support groups among 330 Latina breast cancer survivors recruited from a population-based tumor registry in counties with Spanish language support groups.
Thirty-two percent had ever used a support group. Among the 225 (68%) women who had never used one, major reasons for not using a support group included receiving enough support from other sources (20%), not needing one (18%), and being unaware of groups in their local area (17%). Women receiving quite a bit or a lot of encouragement from family members to attend a cancer support group were seven times more likely to have ever attended one than women receiving little or no encouragement (OR = 7.04, 95% CI 3.72, 13.30). Spiritual well-being was inversely associated with ever having attended a support group (OR = 0.93, 95% CI 0.89, 0.98).
Results suggest that families play an important role in promoting use of support groups among Latina breast cancer survivors, and that spirituality may offer an alternative source of support.
More effort should be directed toward providing culturally and linguistically appropriate support services to breast cancer survivors, and increasing awareness of these services among oncologists, patients and family members.
尽管与白人女性相比，被诊断患有乳腺癌的拉丁裔女性可能面临更高的心理社会发病风险，但很少有人利用诸如支持小组之类的支持服务。拉丁裔人群对这些服务利用不足的原因尚不清楚。
一项横断面电话调查研究了从设有西班牙语支持小组的县的基于人群的肿瘤登记处招募的330名拉丁裔乳腺癌幸存者中，易患因素、促成因素和需求因素与癌症支持小组使用情况之间的关联。
32%的人曾使用过支持小组。在225名（68%）从未使用过支持小组的女性中，不使用支持小组的主要原因包括从其他来源获得了足够的支持（20%）、不需要（18%）以及不知道当地有相关小组（17%）。从家庭成员那里得到相当多或很多鼓励去参加癌症支持小组的女性参加过小组的可能性是得到很少或没有得到鼓励的女性的7倍（比值比=7.04，95%置信区间3.72，13.30）。精神幸福感与参加过支持小组呈负相关（比值比=0.93，95%置信区间0.89，0.98）。
结果表明，家庭在促进拉丁裔乳腺癌幸存者使用支持小组方面发挥着重要作用，并且精神层面可能提供了另一种支持来源。
应更加努力地为乳腺癌幸存者提供文化和语言适宜的支持服务，并提高肿瘤学家、患者及其家庭成员对这些服务的认识。
