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晚期癌症患者的无意义感:一项随机对照研究。

Meaninglessness in terminally ill cancer patients: a randomized controlled study.

作者信息

Morita Tatsuya, Murata Hisayuki, Kishi Emi, Miyashita Mitsunori, Yamaguchi Takuhiro, Uchitomi Yosuke

机构信息

Department of Palliative and Supportive Care, Palliative Care Team, and Seirei Hospice, Seirei Mikatahara General Hospital, Hamamatsu, Shizuoka, Japan.

出版信息

J Pain Symptom Manage. 2009 Apr;37(4):649-58. doi: 10.1016/j.jpainsymman.2008.04.017. Epub 2008 Oct 1.

Abstract

Although recent empirical studies reveal that fostering patients' perception of meaning in their lives is an essential task for palliative care clinicians, few studies have reported the effects of training programs for nurses specifically aimed at improving these skills. The primary aim of this randomized controlled trial was to determine the effects of an educational workshop focusing on patients' feelings of meaninglessness on nurses' confidence, self-reported practice, and attitudes toward caring for such patients, in addition to burnout and meaning of life. The study was designed as a single-institution, randomized controlled trial using a waiting list control. The intervention consisted of eight 180-minute training sessions over four months, including lectures and exercises using structured assessment. A total of 41 nurses were randomly allocated to three groups, which were separately trained, and all were evaluated four times at three-month intervals (before intervention, between each intervention, and after the last intervention). Assessments included validated Confidence and Self-Reported Practice scales, the Attitudes Toward Caring for Patients Feeling Meaningless Scale (including willingness to help, positive appraisal, and helplessness items), the Maslach Burnout Scale, job satisfaction, and the Functional Assessment of Chronic Illness Therapy-Spiritual (FACIT-Sp). One participant withdrew from the study before the baseline evaluation, and the remaining 40 nurses completed the study. The nurses were all female and had a mean age of 31+/-6.4, and mean clinical experience of 8.9+/-5.5 years. There were no significant differences in background among the groups. The intervention effects were statistically significant on the Confidence Scale, the Self-Reported Practice Scale, and the willingness to help, positive appraisal, and helplessness subscales, in addition to the overall levels of burnout, emotional exhaustion, personal accomplishment, job satisfaction, and the FACIT-Sp. The change ratio of each parameter ranged from 5.6% (willingness to help) to 37% for the helplessness score and 51% on the Confidence Scale. The percentages of nurses who evaluated this program as "useful" or "very useful" were 85% (to understand the conceptual framework in caring for terminally ill patients with meaninglessness), 80% (to foster nurses' personal values), and 88% (to know how to provide care for patients with meaninglessness). This educational intervention had a significant beneficial effect on nurse-perceived confidence, practice, and attitudes in providing care for patients feeling meaninglessness, in addition to the levels of burnout and spiritual well-being of nurses.

摘要

尽管最近的实证研究表明,培养患者对生活意义的认知是姑息治疗临床医生的一项重要任务,但很少有研究报告专门针对提高护士这些技能的培训项目的效果。这项随机对照试验的主要目的是确定一个聚焦于患者无意义感的教育工作坊,对护士的信心、自我报告的实践、照顾此类患者的态度,以及职业倦怠和生活意义的影响。该研究设计为单机构随机对照试验,采用等待列表对照。干预措施包括在四个月内进行八次每次180分钟的培训课程,内容包括讲座和使用结构化评估的练习。总共41名护士被随机分配到三个组,分别进行培训,并在三个月的间隔内进行四次评估(干预前、每次干预之间以及最后一次干预后)。评估包括经过验证的信心和自我报告实践量表、照顾感到无意义患者的态度量表(包括帮助意愿、积极评价和无助感项目)、马氏职业倦怠量表、工作满意度以及慢性病治疗功能评估 - 精神量表(FACIT - Sp)。一名参与者在基线评估前退出了研究,其余40名护士完成了研究。这些护士均为女性,平均年龄为31±6.4岁,平均临床经验为8.9±5.5年。各组之间在背景方面没有显著差异。干预效果在信心量表、自我报告实践量表、帮助意愿、积极评价和无助感子量表上具有统计学意义,此外在职业倦怠、情感耗竭、个人成就感、工作满意度以及FACIT - Sp的总体水平上也有显著意义。每个参数的变化率从5.6%(帮助意愿)到无助感得分的37%以及信心量表上的51%不等。将该项目评价为“有用”或“非常有用”的护士比例分别为85%(理解照顾无意义感临终患者的概念框架)、80%(培养护士个人价值观)和88%(知道如何为无意义感患者提供护理)。除了护士的职业倦怠水平和精神幸福感外,这种教育干预对护士在为感到无意义的患者提供护理时的信心、实践和态度有显著的有益影响。

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