Växjö University, School of Health Sciences and Social Work, Sweden.
Int J Nurs Stud. 2009 Feb;46(2):197-203. doi: 10.1016/j.ijnurstu.2008.09.001. Epub 2008 Oct 26.
The aim of the study was to develop knowledge from a patient perspective about falling ill with diabetes. The focus on the process of falling ill process is useful to increase the understanding of this patient group and thus these patients could be met in a way that better lessens their suffering and better facilitates their adaptation to the illness and the new life situation.
The study has been carried out within caring science and a lifeworld phenomenological approach. The data were composed by written narratives, which were analyzed for meaning.
Seven persons with newly discovered diabetes at two hospitals in the south of Sweden have participated in the study.
The result shows that the essential meaning of falling ill with diabetes is a fight not to become one's illness, that everything is to remain as usual and that the new situation will become the natural one. To fall ill with diabetes means to be involved in a course of events charged with emotional diversity. An initial feeling of bodily imbalance can be denied or given a natural explanation, but gives rise to a suspicion that something is wrong. When the bodily imbalance is verified as diabetes, it can be acknowledged and eventually accepted, but the acceptance is possibly an illusory or false reconciliation to be able to go on. There is anyway no choice, if they want to feel well they have to be "adaptable" to their illness, which makes demands that have to be reconciled; demands that must not be allowed to "govern" their lives. Despite being diagnosed with diabetes they still want to continue the same life and be the same persons as before-although they now carry a disease.
The result of the study indicates that more caring focus needs to be directed to the process of falling ill. More efforts are needed to prevent the ill persons from becoming their illness.
本研究旨在从患者角度了解糖尿病发病过程。关注发病过程有助于加深对这一患者群体的认识，从而更好地满足患者的需求，减轻其痛苦，帮助他们更好地适应疾病和新的生活状况。
本研究属于护理科学领域，采用生活世界现象学方法。数据由书面叙述组成，对其进行了意义分析。
本研究在瑞典南部的两家医院招募了 7 名新发糖尿病患者参与。
研究结果表明，糖尿病发病的本质意义在于患者不向疾病屈服，一切照旧，新的状况会成为自然的状况。患糖尿病意味着卷入充满情绪多样性的事件过程。最初的身体失衡感可能会被否认或被自然解释，但会让人怀疑是否有问题。当身体失衡被证实为糖尿病时，可以承认并最终接受，但这种接受可能是一种虚幻或虚假的和解，以便继续下去。无论如何，如果他们想感觉良好，就必须“适应”他们的疾病，这就需要做出协调；这些需求不能被允许“主宰”他们的生活。尽管被诊断患有糖尿病，他们仍希望继续过以前的生活，保持以前的状态——尽管他们现在患有疾病。
研究结果表明，需要更加关注发病过程。需要做出更多努力来防止患者成为他们的疾病。
