Holden C E, Puntis J W, Charlton C P, Booth I W
Children's Hospital, Birmingham.
Arch Dis Child. 1991 Jan;66(1):148-51. doi: 10.1136/adc.66.1.148.
A questionnaire was administered to 70 families with experience of home enteral nutrition. All but one patient received at least some of their feeding overnight. During 11,041 patient days of home enteral nutrition, no serious complications were seen. Sleep disturbance was common, however, and affected 59 parents and 35 children. A nocturnal cough or 'chestiness' were noted in 10 children suggesting occult gastro-oesophageal reflux. Enteral feeding disposables were not prescribable by general practitioners, and funding for the equipment was inadequate in the hospital and community. The mean time to arrange funding for equipment was eight months (range two weeks to two years). Parental views on home enteral nutrition were positive and none felt that its disadvantages outweighed the benefits. Altogether 35 children were described as being more happy and active. Given adequate preparation and continued support at home, parents can manage home enteral nutrition safely and effectively.
我们对70个有家庭肠内营养经验的家庭进行了问卷调查。除1名患者外,所有患者至少在夜间接受了部分喂养。在11041个家庭肠内营养患者日期间,未观察到严重并发症。然而,睡眠障碍很常见,59名家长和35名儿童受到影响。10名儿童出现夜间咳嗽或“胸闷”,提示隐匿性胃食管反流。全科医生无法开具肠内喂养一次性用品的处方,医院和社区的设备资金不足。安排设备资金的平均时间为8个月(范围为两周至两年)。家长对家庭肠内营养的看法是积极的,没有人认为其缺点超过优点。共有35名儿童被描述为更加快乐和活跃。在家中给予充分的准备和持续的支持,家长可以安全有效地管理家庭肠内营养。