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以患者为中心的护理对提升患者福祉的重要性:一位癌症幸存者的视角

Importance of patient-centered care in enhancing patient well-being: a cancer survivor's perspective.

作者信息

Arora Neeraj K

机构信息

Outcomes Research Branch, Applied Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, 6130 Executive Blvd., Bethesda, MD 20892-7344, USA.

出版信息

Qual Life Res. 2009 Feb;18(1):1-4. doi: 10.1007/s11136-008-9415-5. Epub 2008 Nov 14.

DOI:10.1007/s11136-008-9415-5
PMID:19005778
Abstract

In this narrative article, the author, a long-term cancer survivor, reflects on his personal interactions with the healthcare system over a period of 14 years in order to highlight the importance of delivering patient-centered care. He makes a case for why quality of care assessments are incomplete if they focus on clinical indicators of quality alone and exclude systematic assessment of the patient-centered aspects of care from the patient's perspective. The important role played by patient-centered care in reducing patient suffering and enhancing well-being is underscored in this commentary.

摘要

在这篇叙述性文章中,作者是一位长期癌症幸存者,他回顾了自己在14年期间与医疗系统的个人互动,以强调提供以患者为中心的护理的重要性。他提出了一个观点,即如果护理质量评估仅关注质量的临床指标,而从患者角度排除对护理中以患者为中心方面的系统评估,那么这种评估就是不完整的。这篇评论强调了以患者为中心的护理在减轻患者痛苦和增进幸福感方面所发挥的重要作用。

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本文引用的文献

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Results of the National Initiative for Cancer Care Quality: how can we improve the quality of cancer care in the United States?国家癌症护理质量倡议的结果:我们如何提高美国的癌症护理质量?
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The quality of health care delivered to adults in the United States.美国为成年人提供的医疗保健质量。
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A user's manual for the IOM's 'Quality Chasm' report.一份关于医学研究所“质量鸿沟”报告的用户手册。
建立医疗旅游国际质量标准的方法。
Front Public Health. 2016 Mar 4;4:29. doi: 10.3389/fpubh.2016.00029. eCollection 2016.
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Post-operative care to promote recovery for thoracic surgical patients: a nursing perspective.促进胸外科手术患者康复的术后护理:护理视角
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Symptom prevalence in lung and colorectal cancer patients.肺癌和结直肠癌患者的症状患病率。
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Social support, self-efficacy for decision-making, and follow-up care use in long-term cancer survivors.长期癌症幸存者的社会支持、决策自我效能及后续护理利用情况。
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Why do some patients prefer to leave decisions up to the doctor: lack of self-efficacy or a matter of trust?为什么有些患者更愿意将决策交给医生:是缺乏自我效能感还是信任问题?
J Cancer Surviv. 2013 Dec;7(4):592-601. doi: 10.1007/s11764-013-0298-2. Epub 2013 Jul 27.
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How confident are young adult cancer survivors in managing their survivorship care? A report from the LIVESTRONG™ Survivorship Center of Excellence Network.年轻癌症幸存者对管理其生存护理的信心如何?来自 LIVESTRONG 生存中心卓越网络的报告。
J Cancer Surviv. 2011 Dec;5(4):371-81. doi: 10.1007/s11764-011-0199-1. Epub 2011 Nov 2.
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Improving modern cancer care through information technology.通过信息技术改善现代癌症护理。
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