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多发性硬化症患者自我管理认知方案的过程评估。

Process evaluation of a self-management cognitive program for persons with multiple sclerosis.

机构信息

Department of Occupational Therapy, School of Health Professions, Sackler Faculty of Medicine, Tel Aviv University, PO Box 39040, Ramat Aviv, Tel Aviv 69978, Israel.

出版信息

Patient Educ Couns. 2009 Jul;76(1):77-83. doi: 10.1016/j.pec.2008.11.007. Epub 2008 Dec 31.

DOI:10.1016/j.pec.2008.11.007
PMID:19118971
Abstract

OBJECTIVE

Cognitive changes are highly prevalent in multiple sclerosis (MS) however evidence-based research on cognitive rehabilitation programs for this population is only beginning to emerge. This article presents results from a process evaluation of a group-based, self-management cognitive intervention program developed specifically for people with MS.

METHODS

Quantitative and qualitative data were collected using focus group interviews, facilitator reflection notes, and program evaluations. The data were used to identify the strengths and limitations of the program and to document recommendations for future development. Forty-one individuals met eligibility criteria and were enrolled in the program.

RESULTS

Overall, participants reported that the program had a positive impact on their ability to manage cognitive symptoms. Program components that contributed to successful application of cognitive management strategies included increasing participant's knowledge of cognitive changes, problem-solving through cognitive challenges, practicing strategies through homework assignments, and conducting the program in a group format. Participants recommended that caregivers be included in future programs.

CONCLUSION

Both content and structural components of the program facilitated participants' ability to manage cognitive changes and contributed to behavior changes made by the participants.

PRACTICE IMPLICATIONS

This study points to the benefits of incorporating self-management programs into the cognitive rehabilitation process in MS.

摘要

目的

认知变化在多发性硬化症(MS)中非常普遍,然而,针对该人群的认知康复计划的循证研究才刚刚开始。本文介绍了针对 MS 患者专门开发的基于小组的自我管理认知干预计划的过程评估结果。

方法

使用焦点小组访谈、协调员反馈笔记和计划评估收集定量和定性数据。这些数据用于确定该计划的优势和局限性,并记录对未来发展的建议。符合条件的 41 名参与者参加了该计划。

结果

总体而言,参与者报告该计划对他们管理认知症状的能力产生了积极影响。有助于成功应用认知管理策略的计划组成部分包括增加参与者对认知变化的了解、通过认知挑战解决问题、通过家庭作业练习策略以及以小组形式进行计划。参与者建议在未来的计划中纳入照顾者。

结论

该计划的内容和结构组成部分都促进了参与者管理认知变化的能力,并促成了参与者的行为改变。

实践意义

这项研究表明将自我管理计划纳入 MS 的认知康复过程中的益处。

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