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患有囊性纤维化的年轻人、儿科癌症幸存者以及无慢性病病史的同龄人在与健康相关的个人目标追求和幸福感方面的阻碍

Health-related hindrance of personal goal pursuit and well-being of young adults with cystic fibrosis, pediatric cancer survivors, and peers without a history of chronic illness.

作者信息

Schwartz Lisa A, Drotar Dennis

机构信息

The Children's Hospital of Philadelphia, Division of Oncology, 34th and Civic Center Blvd, Philadelphia, PA 19104, USA.

出版信息

J Pediatr Psychol. 2009 Oct;34(9):954-65. doi: 10.1093/jpepsy/jsn144. Epub 2009 Jan 23.

Abstract

OBJECTIVE

Study examined content of personal goals, health-related hindrance (HRH; i.e., impact of health on goals), and relationship of HRH to health status and psychological well-being in young adults with cystic fibrosis (CF; n = 48), who survived childhood cancer (n = 57), and without history of chronic illness (n = 105).

METHODS

Participants completed measures of life events, quality of life, psychological well-being, and goals.

RESULTS

No group differences were found on goal content. HRH significantly related to subjective well-being and distress after controlling for demographics, negative life events, physical health-related quality of life, disease status, and self-efficacy. HRH related to health status variables. Cancer survivors without cancer late effects had significantly less HRH than the other groups.

CONCLUSIONS

Health status may affect pursuit of personal goals and relate to well-being of young adults. The assessment of HRH has potential clinical utility for targeting interventions and warrants further research.

摘要

目的

本研究调查了患有囊性纤维化(CF;n = 48)、曾患儿童期癌症(n = 57)以及无慢性病病史(n = 105)的年轻成年人的个人目标内容、与健康相关的阻碍(HRH;即健康对目标的影响),以及HRH与健康状况和心理健康之间的关系。

方法

参与者完成了生活事件、生活质量、心理健康和目标的测量。

结果

在目标内容方面未发现组间差异。在控制了人口统计学、负面生活事件、与身体健康相关的生活质量、疾病状态和自我效能感后,HRH与主观幸福感和痛苦显著相关。HRH与健康状况变量相关。无癌症晚期效应的癌症幸存者的HRH明显低于其他组。

结论

健康状况可能会影响个人目标的追求,并与年轻成年人的幸福感相关。HRH评估在针对干预措施方面具有潜在的临床效用,值得进一步研究。

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