Gillick Muriel R
Department of Ambulatory Care and Prevention, Harvard Medical School, Boston, Massachusetts 02215, USA.
J Palliat Med. 2009 Feb;12(2):121-5. doi: 10.1089/jpm.2008.0240.
Abstract The publication of SUPPORT (Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments) in 1995 identified major problems with decision making near the end of life. Since that time, palliative care has developed as a specialty and end-of-life communication has evolved. However, five problems in decision-making remain today: the need to discuss underlying health status with patients; the overburdening of patients and families with too many choices; lack of appreciation of the importance of symbolism in end-of-life care; confusion between cultural beliefs and scientific facts; and difficulties with making decisions because of rapid shifts by the medical team from advocating cure to comfort. Each of these issues is described.
摘要 1995年发表的SUPPORT(理解治疗结果与风险的预后及偏好研究)揭示了临终决策存在的重大问题。自那时起,姑息治疗已发展成为一门专业学科,临终沟通也有所演变。然而,如今决策制定仍存在五个问题:需要与患者讨论潜在健康状况;患者和家属面临过多选择而不堪重负;对临终关怀中象征意义的重要性认识不足;文化信仰与科学事实之间的混淆;以及由于医疗团队从主张治愈迅速转向提供舒适护理而导致的决策困难。本文对上述每个问题都进行了阐述。