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患有皮肤病的青少年有特定的生活质量问题。

Adolescents with skin disease have specific quality of life issues.

作者信息

Golics C J, Basra M K A, Finlay A Y, Salek M S

机构信息

Centre for Socioeconomic Research, Welsh School of Pharmacy, Cardiff University, Cardiff CF14 4XN, UK.

出版信息

Dermatology. 2009;218(4):357-66. doi: 10.1159/000205524. Epub 2009 Feb 26.

Abstract

BACKGROUND

Adolescence is a period of life with its own unique characteristics.

OBJECTIVES

To provide an in-depth understanding of the impact of skin disease on different aspects of adolescents' health-related quality of life (HRQoL).

METHODS

Semi-structured qualitative interviews were conducted with a sample of dermatology patients between 12 and 19 years of age, attending the dermatology outpatient clinic of a secondary referral centre. Participants were invited to talk in detail about all the ways their lives had been affected by their skin disease. Interviews were transcribed verbatim.

RESULTS

Thirty-two adolescents (males = 10, females = 22) with a mean age of 15.7 years (range = 12-18 years) participated in the interviews. Twenty-eight HRQoL themes adversely affected by skin diseases were identified from the interviews which were grouped under 6 main HRQoL domains - psychological impact (91% of patients), physical impact (81%), social impact (81%), impact on lifestyle (63%), need for support (41%) and education and employment (34%). The number of HRQoL themes affected in each individual varied between 1 and 23 (mean = 8.1).

CONCLUSIONS

The results of this study revealed the extent and nature of the impact of skin diseases on adolescents' HRQoL. A number of issues identified were specific to adolescents, highlighting the need for specific HRQoL assessment.

摘要

背景

青春期是人生中一个具有独特特征的阶段。

目的

深入了解皮肤病对青少年健康相关生活质量(HRQoL)不同方面的影响。

方法

对一家二级转诊中心皮肤科门诊就诊的12至19岁皮肤科患者样本进行了半结构化定性访谈。邀请参与者详细谈论他们的生活因皮肤病受到影响的所有方面。访谈内容逐字转录。

结果

32名青少年(男性 = 10名,女性 = 22名)参与了访谈,平均年龄为15.7岁(范围 = 12 - 18岁)。从访谈中确定了28个受皮肤病负面影响的HRQoL主题,这些主题被归为6个主要的HRQoL领域——心理影响(91%的患者)、身体影响(81%)、社会影响(81%)、对生活方式的影响(63%)、对支持的需求(41%)以及教育和就业(34%)。每个个体受影响的HRQoL主题数量在1至23个之间(平均 = 8.1个)。

结论

本研究结果揭示了皮肤病对青少年HRQoL影响的程度和性质。所确定的一些问题是青少年特有的,突出了进行特定HRQoL评估的必要性。

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