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参照坎耶社区居家护理项目,探讨影响艾滋病毒/艾滋病及其他绝症患者护理质量的挑战。

Challenges impacting on the quality of care to persons living with HIV/AIDS and other terminal illnesses with reference to Kanye community home-based care programme.

作者信息

Kang'ethe S M

机构信息

Skill Share International.

出版信息

SAHARA J. 2009 Mar;6(1):24-32. doi: 10.1080/17290376.2009.9724926.

DOI:10.1080/17290376.2009.9724926
PMID:19399313
Abstract

HIV/AIDS has been found to be a challenging disease to humanity, its challenge spin-offs falling especially on to the caregivers of those infected and affected by the virus. This paper aims to discuss the challenges influencing the state of caregiving in the Kanye community home-based care (CHBC) programme in Botswana. The study was qualitative in design and explorative in nature, involving 82 primary caregivers in focus group discussions, and 5 CHBC nurses in individual interviews. Caregivers were found challenged by lack of community networks support, inadequate sanitary and care packages, poor shelter compromising privacy, inadequate income and food for their clients, inadequate care motivation as their volunteerism does not attract any payment, inadequate health personnel to offer psychosocial support like counselling, and an unconducive caring environment generally. Putting in place policies to redress caregivers' poverty, helping caregivers start income-generating projects, increasing community assistance and caregiving facilities are recommended as factors to address caregiver challenges.

摘要

人们发现,艾滋病毒/艾滋病对人类而言是一种具有挑战性的疾病,其带来的挑战尤其落在了那些受该病毒感染和影响者的照料者身上。本文旨在探讨影响博茨瓦纳卡内社区居家护理(CHBC)项目中照料状况的种种挑战。该研究在设计上属于定性研究,本质上是探索性研究,涉及82名主要照料者参与焦点小组讨论,以及5名CHBC护士接受个人访谈。研究发现,照料者面临诸多挑战,包括缺乏社区网络支持、卫生和护理包不足、遮蔽设施简陋影响隐私、为服务对象提供的收入和食物不足、由于其志愿服务没有报酬而导致照料积极性不足、缺乏提供心理咨询等心理社会支持的卫生人员,以及总体上不利于照料的环境。建议制定政策以缓解照料者的贫困状况,帮助照料者开展创收项目,增加社区援助和照料设施,以此作为应对照料者所面临挑战的因素。

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