Montel Sebastien, Laurence Valerie, Copel Laure, Pacquement Helene, Flahault Cecile
Psycho-Oncology Department, Institut Curie, Paris, France.
Palliat Support Care. 2009 Mar;7(1):27-35. doi: 10.1017/S1478951509000054.
To improve the palliative care and more effectively meet the needs of young patients and their families at the end of life, the authors investigated the place of death of adolescents and young adults treated in their institution and identified some of the factors influencing the choice of place of death.
The parents and/or partners of adolescents and young adults (15 to 25 years old) who died at Institut Curie (cancer center) between 2000 and 2003 were contacted. Twenty-one families agreed to participate in the interview between October 2005 and April 2006. Analysis of the interviews comprised a descriptive part and a thematic part.
Nineteen out of 21 (90%) families declared that they did not really choose their child's place of death due to lack of time. However, all families said that they preferred the hospital. No family attended a bereavement group after their child's death and only 3 families (14%) consulted a mental health care professional. Thematic analysis showed that representations and beliefs concerning life and death at least partly determined the family's capacity to discuss the place of death with their child.
Although progress has been made over recent years in France, there is still considerable room for improvement of palliative care to more effectively meet the needs of young patients and their families at the end of life.
为了改善姑息治疗并更有效地满足年轻患者及其家人在生命末期的需求，作者调查了在其机构接受治疗的青少年和青年的死亡地点，并确定了一些影响死亡地点选择的因素。
联系了2000年至2003年期间在居里研究所（癌症中心）去世的青少年和青年（15至25岁）的父母和/或伴侣。2005年10月至2006年4月期间，有21个家庭同意参与访谈。访谈分析包括描述性部分和主题性部分。
21个家庭中有19个（90%）表示，由于时间不足，他们并未真正选择孩子的死亡地点。然而，所有家庭都表示他们更喜欢医院。孩子去世后，没有家庭参加过哀伤辅导小组，只有3个家庭（14%）咨询过心理健康护理专业人员。主题分析表明，关于生与死的观念和信仰至少在一定程度上决定了家庭与孩子讨论死亡地点的能力。
尽管近年来法国已取得进展，但在姑息治疗方面仍有很大的改进空间，以便更有效地满足年轻患者及其家人在生命末期的需求。
