J Neurol. 2009 Nov;256(11):1932-5. doi: 10.1007/s00415-009-5257-5. Epub 2009 Jul 23.
Since 2002, an MS Registry has been implemented by the German MS Society in more than 100 German MS centres. The objective is to provide information about disease characteristics, and to monitor the health care situation in a large population of patients. The aim of this report is to give detailed results on MS symptoms. By October 2008, data sets from 16,554 patients were recorded by 86 centres. A strikingly high number of persons suffered from fatigue and other "invisible" symptoms during early and late stages of the disease, underscoring the negative impact of these symptoms on quality of life in MS patients.
自 2002 年以来，德国多发性硬化症协会在 100 多个德国多发性硬化症中心实施了多发性硬化症登记处。其目的是提供有关疾病特征的信息，并监测大量患者的医疗保健状况。本报告的目的是详细介绍多发性硬化症症状的结果。截至 2008 年 10 月，86 个中心共记录了 16554 名患者的数据。在疾病的早期和晚期，有大量的人患有疲劳和其他“无形”症状，这突显了这些症状对多发性硬化症患者生活质量的负面影响。
