• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

告知坏消息:与孩子沟通父母患多发性硬化症的情况。

Breaking bad news: communication around parental multiple sclerosis with children.

作者信息

Paliokosta Elena, Diareme Stavroula, Kolaitis Gerasimos, Ferentinos Spyros, Lympinaki Eirini, Tsiantis John, Romer George, Karageorgiou Clementine, Tsiantis Alkis, Anasontzi Sofia, Tsalamanios Emmanuel

机构信息

Department of Child and Adolescent Psychiatry, Athens University Medical School, Agia Sophia Children's Hospital, Athens, Greece.

出版信息

Fam Syst Health. 2009 Mar;27(1):64-76. doi: 10.1037/a0015226.

DOI:10.1037/a0015226
PMID:19630446
Abstract

This study investigates the relation of communication around parental multiple sclerosis (MS) to family dysfunction and mental health problems of the children in Greek families. Fifty-six families with a parent with MS were studied regarding emotional well-being of children, parental depression, family functioning, and illness' related impairment, correlated to the amount of information about parental illness provided to children. Significant differences were found in three dimensions of child psychopathology on maternal scores of Child Behavior Checklist, between children who had partial information about parental illness and the other two groups of children who had explicit or no information at all. Differences were also observed in children's scores on (Youth Self Report) social problems between the same groups. The finding that children who had only partial information about their parents' illness presented more problems, illustrates the importance of "how, what, and how much" of information is communicated to children. Clinical implications are discussed in terms of the families' difficulties with communicating parental illness with their children and possible need for professional support.

摘要

本研究调查了希腊家庭中围绕父母多发性硬化症(MS)的沟通与子女家庭功能障碍和心理健康问题之间的关系。对56个有患MS症父母的家庭进行了研究,涉及子女的情绪健康、父母抑郁、家庭功能以及与疾病相关的损伤,并将这些与向子女提供的有关父母疾病的信息量进行关联。在儿童行为检查表的母亲得分方面,在对父母疾病只有部分信息的儿童与另外两组分别拥有明确信息或完全没有信息的儿童之间,发现儿童精神病理学的三个维度存在显著差异。在同一组儿童的(青少年自我报告)社会问题得分上也观察到差异。那些对父母疾病只有部分信息的儿童出现更多问题这一发现,说明了向儿童传达信息的“方式、内容和数量”的重要性。从家庭在向子女传达父母疾病信息方面的困难以及可能需要专业支持的角度讨论了临床意义。

相似文献

1
Breaking bad news: communication around parental multiple sclerosis with children.告知坏消息:与孩子沟通父母患多发性硬化症的情况。
Fam Syst Health. 2009 Mar;27(1):64-76. doi: 10.1037/a0015226.
2
The impact of parental multiple sclerosis on the adjustment of children and adolescents.父母患多发性硬化症对儿童及青少年适应能力的影响。
Adolescence. 2004 Fall;39(155):551-69.
3
The impact of childhood chronic neurological diseases on Greek families.儿童慢性神经疾病对希腊家庭的影响。
Child Care Health Dev. 2005 Jan;31(1):109-15. doi: 10.1111/j.1365-2214.2005.00492.x.
4
Non-infant adoption from care: lessons for safeguarding children.脱离照护后的非婴幼儿收养:儿童保护的经验教训
Child Care Health Dev. 2009 Jul;35(4):561-7. doi: 10.1111/j.1365-2214.2009.00978.x.
5
The family APGAR and psychosocial problems in children: a report from ASPN and PROS.儿童的家庭阿普加评分与心理社会问题:来自ASPN和PROS的报告。
J Fam Pract. 1998 Jan;46(1):54-64.
6
Improving child and parent mental health in primary care: a cluster-randomized trial of communication skills training.改善初级保健中儿童和家长的心理健康:沟通技能培训的整群随机试验
Pediatrics. 2008 Feb;121(2):266-75. doi: 10.1542/peds.2007-0418.
7
Is parental coping associated with the level of function in children with physical disabilities?父母的应对方式与身体残疾儿童的功能水平有关吗?
Child Care Health Dev. 2009 Jan;35(1):33-40. doi: 10.1111/j.1365-2214.2008.00884.x.
8
Parental distress, family functioning, and social support in families with and without a child with neurofibromatosis 1.有和没有1型神经纤维瘤病患儿的家庭中父母的痛苦、家庭功能和社会支持
J Pediatr Psychol. 2008 May;33(4):422-34. doi: 10.1093/jpepsy/jsm077. Epub 2007 Sep 28.
9
Parent-child interaction: a comparison of parents' perceptions in three groups.亲子互动:三组家长认知的比较
Disabil Rehabil. 2004;26(21-22):1313-22. doi: 10.1080/09638280412331280343.
10
Information and communication when a parent has advanced cancer.当父母患有晚期癌症时的信息与沟通。
J Affect Disord. 2009 Apr;114(1-3):149-55. doi: 10.1016/j.jad.2008.06.022. Epub 2008 Aug 5.

引用本文的文献

1
Young Carers' Identification: Comparing Adolescents' and Parents' Perspectives.青少年照顾者的识别:比较青少年和家长的观点。
Child Care Health Dev. 2024 Nov;50(6):e70006. doi: 10.1111/cch.70006.
2
The Psychosocial Impact of Parental Multiple Sclerosis on Children and Adolescents: A Systematic Review.父母患多发性硬化症对儿童和青少年的心理社会影响:一项系统综述
Int J MS Care. 2023 Mar-Apr;25(2):63-70. doi: 10.7224/1537-2073.2021-075. Epub 2022 Oct 13.
3
Family Functioning and Multiple Sclerosis: Study Protocol of a Multicentric Italian Project.
家庭功能与多发性硬化症:一项意大利多中心项目的研究方案
Front Psychol. 2021 Jun 9;12:668010. doi: 10.3389/fpsyg.2021.668010. eCollection 2021.
4
Being parents with epilepsy: thoughts on its consequences and difficulties affecting their children.身为患有癫痫症的父母:关于其对子女影响的后果及困难的思考。
Neuropsychiatr Dis Treat. 2015 May 27;11:1291-8. doi: 10.2147/NDT.S74222. eCollection 2015.
5
Informing the children when a parent is diagnosed as having multiple sclerosis.当父母被诊断出患有多发性硬化症时告知孩子。
Int J MS Care. 2015 Jan-Feb;17(1):42-8. doi: 10.7224/1537-2073.2013-047.
6
Children and adolescents adjustment to parental multiple sclerosis: a systematic review.儿童和青少年对父母多发性硬化症的适应:一项系统综述。
BMC Neurol. 2014 May 19;14:107. doi: 10.1186/1471-2377-14-107.
7
Telling adolescents a parent is dying.告知青少年其父母即将离世。
J Palliat Med. 2014 May;17(5):512-20. doi: 10.1089/jpm.2013.0344. Epub 2014 Apr 18.