1 Department of Nursing, Kent State University , Kent, Ohio.
J Palliat Med. 2014 May;17(5):512-20. doi: 10.1089/jpm.2013.0344. Epub 2014 Apr 18.
When a parent is terminally ill, one of the major challenges facing families is informing children of the parent's condition and prognosis. This study describes four ways in which parents disclose information about a parent's life-threatening illness to their adolescent children.
We audio-recorded and transcribed 61 individual interviews with hospice patients who were recruited from a large hospice in northeastern Ohio, their spouses/partners, and their adolescent children. The interviews were coded and analyzed using a constant comparison approach.
Families inform adolescents about the progression of a parent's terminal illness in characteristic ways that remain fairly consistent throughout the illness, and are aimed at easing the adolescents' burden and distress. The families engaged in the process of disclosure in one of four ways: measured telling, skirted telling, matter-of-fact telling, and inconsistent telling. These results will inform the development of interventions that assist families with disclosure and are tailored to each family's communication style.
当父母身患绝症时，家庭面临的主要挑战之一是向子女告知父母的病情和预后。本研究描述了父母向青少年子女透露危及生命的疾病信息的四种方式。
我们对来自俄亥俄州东北部一家大型临终关怀机构的临终患者、他们的配偶/伴侣及其青少年子女进行了 61 次单独访谈，并对其进行了音频录制和转录。使用恒比法对访谈进行编码和分析。
家庭以有特色的方式告知青少年父母的病情进展，这种方式在整个疾病过程中相对保持一致，旨在减轻青少年的负担和痛苦。家庭以四种方式之一参与披露过程：有分寸地告知、回避告知、实事求是地告知和不一致地告知。这些结果将为制定帮助家庭进行披露的干预措施提供信息，并根据每个家庭的沟通方式进行调整。
