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全科医生对首选死亡地点的认知及其与首选地点死亡的相关性:荷兰全国死亡率随访研究。

General practitioner awareness of preferred place of death and correlates of dying in a preferred place: a nationwide mortality follow-back study in the Netherlands.

机构信息

Department of Public and Occupational Health, EMGO Institute, VU University Medical Center, Amsterdam, The Netherlands.

出版信息

J Pain Symptom Manage. 2009 Oct;38(4):568-77. doi: 10.1016/j.jpainsymman.2008.12.007. Epub 2009 Aug 18.

Abstract

To improve the quality of end-of-life care, general practitioner (GP) awareness of where their patients prefer to die is important. To examine GP awareness of patients' preferred place of death (POD), associated patient- and care-related characteristics, and the congruence between preferred and actual POD in The Netherlands, a mortality follow-back study was conducted between January 2005 and December 2006. Standardized registration forms were used to collect data on all nonsudden deaths (n=637) by means of the Dutch Sentinel Network, a nationally representative network of general practices. Forty-six percent of patients had GPs who were not aware of their preferred POD. Of those whose GPs were aware, 88% had preferred to die in a private or care home, 10% in a hospice or palliative care unit, and 2% in a hospital. GPs were informed by the patients themselves in 84% of cases. Having financial status "above average," a life-prolongation or palliative care goal, and using specialist palliative care services were associated with higher GP-awareness odds. Four-fifth of patients with known preferred POD died there. There is a potential for improving GP awareness of patients' preferred POD. Such awareness is enhanced when palliation is an active part of end-of-life care. The hospital is the POD least preferred by dying patients.

摘要

为了提高临终关怀的质量,全科医生(GP)了解患者希望在哪里去世非常重要。为了研究荷兰全科医生对患者首选死亡地点(POD)的认识、相关的患者和护理相关特征,以及首选和实际 POD 之间的一致性,进行了一项死亡率回溯研究,该研究于 2005 年 1 月至 2006 年 12 月在荷兰 Sentinel 网络(一个具有全国代表性的全科医生网络)中进行。使用标准化的登记表格,通过荷兰 Sentinel 网络收集所有非突发性死亡(n=637)的数据。46%的患者的 GP 不知道他们的首选 POD。在那些知道的患者中,88%的人希望在私人或护理院去世,10%的人希望在临终关怀院或姑息治疗病房去世,2%的人希望在医院去世。在 84%的情况下,是由患者本人告知 GP 的。财务状况“高于平均水平”、延长生命或姑息治疗目标以及使用专科姑息治疗服务与更高的 GP 知晓几率相关。已知首选 POD 的患者中有四分之五在那里去世。提高 GP 对患者首选 POD 的认识有很大的空间。当姑息治疗成为临终关怀的一个积极部分时,这种认识会得到加强。医院是临终患者最不希望去的地方。

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