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新西兰人对获取电子健康记录的态度:使用情景模拟进行全国性研究的初步结果。

New Zealanders' attitudes towards access to their electronic health records: preliminary results from a national study using vignettes.

机构信息

Department of Management, Massey University, Palmerston North, New Zealand.

出版信息

Health Informatics J. 2009 Sep;15(3):212-28. doi: 10.1177/1460458209337435.

DOI:10.1177/1460458209337435
PMID:19713396
Abstract

This project investigates public attitudes towards sharing confidential personal health information held in electronic health records (EHRs). The project uses computer assisted telephone interviewing (CATI) to conduct a quantitative national survey of the attitudes of New Zealanders towards access to their personal health information using vignettes. Respondents are presented with vignettes which describe ways in which their health information might be used, and asked about their attitude to and consent for each type of access. The project outcome will be a specification of requirements for an e-consent model meeting the needs of most New Zealanders, thus enabling the potential benefits of electronically sharing confidential health information from EHRs. This article presents preliminary results from the first 1828 respondents. Respondents were most willing to share their information for the purpose of providing care. However, removing their name and address greatly increased the acceptability of sharing information for other purposes.

摘要

本项目调查了公众对共享电子健康记录(EHRs)中保密个人健康信息的态度。该项目使用计算机辅助电话访谈(CATI)对新西兰人使用情景描述来获取个人健康信息的态度进行了全国性的定量调查。受访者会看到描述他们的健康信息可能被使用的方式的情景描述,并被问到他们对每种访问类型的态度和同意。该项目的结果将是为满足大多数新西兰人需求的电子同意模型制定规范要求,从而使从 EHR 中共享机密健康信息的潜在好处成为可能。本文介绍了前 1828 名受访者的初步结果。受访者最愿意为提供护理而分享他们的信息。然而,去除他们的姓名和地址极大地增加了为其他目的分享信息的可接受性。

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